Survivors
& Caregivers
click on the names to read more about them
If you would like to have your name, email address and a bio added here just e-mail me at billmcm@buffnet.net
- Bill McMurray,
billmcm@buffnet.net,
Web Page
- I suffered a massive brain stem stroke in March of 1990, it left me paralyzed from the
neck down and unable to talk.
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- Joe and Jackie,
jackieby@hotmail.com,
Web Page
- Joe had a massive brain stem stroke resulting in "Locked In Syndrome" on January 20, 1997.
At the time he was 41 years old, very physically fit and active.
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- Agnes,
8161935@msn.com
- My name is Agnes and I had a brain stem stroke on July 1, 1999 at the age of 41. I had no known risk factors, except for the fact that I was on birth control pills.
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- Dave Daul,
davenshe@gte.net,
Web
page
- I was 28 years old in Oct. of 94 when my stroke hit. I am paralyzed from the neck down
except for some movement in my right arm and unable to verbalize to communicate.
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- David "SURVIVOR"
Wheeler,
survivor97dw@aol.com,
Pictures
& Poems
- I am David, April 25th,1997 at 7:30 P.M. Friday at age 25, my three day
headache suddenly became a massive brainstem hemorrhage, followed by a
massive brainstem stroke. I was pronounced brain dead in the emergency
room....
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- Henry and Ruby Moss
HMoss@aol.com
Web Page
- Henry is very alert and can express his emotions. However, on Friday, August 13, 1999, Henry E. Moss at the age of 56, (spouse of Ruby; and father of Mark (age 22) and Michael (age 18)) had a very debilitating stroke that damaged the cells in the pons area of the brain stem. This resulted in the "locked-in syndrome".
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- Jason
ArmitageFamily@prodigy.net
- Jason was seven years old when he was playing the last soccer game before Thanksgiving. Another player and he ran into each other and butted heads.
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- Judy Mozersky
- Locked In: The Story of Judy Mozersky from Cornell Magazine.
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- Kathy,
KATBLU327@aol.com
- My name is KATHY.....I am 40 years old....I am a mother of 4 children....In July of 1997
I had a brain stem stroke. But I have beat the odds. I was diagnosed with locked-in
syndrome.
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- Katie Adamson,
NZKatie@aol.com,
Web Page
- Mother and stroke survivor tells her story and launches inspirational and
motivational speaking career.
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- Kristi,
Swetypty69@aol.com
- My name is Kristi, I had a massive locked in stroke on 12/24/99. Merry x-mas to me NOT!
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- Linda Simpson
- Linda does an article each month and it appears on the voice web site. She doesn't have a computer yet....
she is trying very hard to get one. Right now she writes her column by pointing a laser
beam, attached to her head, at an alphabet board and her caregivers write the words out as
she spells them.
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- Lynn Hanninen,
leh1@lehigh.edu,
Web Page
- I had a brainstem stroke ten years ago. I'm paralyzed from the neck down and I can't
speak.
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- Michael & Wendy Indick
wami104@twcny.rr.com
- Age 41 and suffered a brain-stem stroke which resulted in locked-in syndrome on Dec. 27, 1999. Still in an institutional setting as funding has not yet been obtained to bring him home to his wife and children.
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- Mikey Dee Send Mikey an email to be read to him at the hospital
tbugara@hotmail.com
- On February 7, 2000 Mikey Dee suffered a stroke which caused damage to the ventral pons in his brain stem. This is a severe and rare kind of stroke which can leave the patient with what is called "locked-in syndrome."
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- Pegg Gardner,
pgardner@netrax.net
- I am the wife of Frank Gardner, a survivor of a brain stem stroke and locked-in
syndrome.
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- Richard
W. Francis, rwfrancis@jps.net
Web Page
- I had a brainstem stroke on November 17, 1997. Thank God my muscle tone was strong and I
was able to teach my muscle how to work again and worked my way out of a wheel chair. I
cannot feel hot or cold sensations from my right chest to my toes and my right side burns
24 hours a day like my blood is on fire. My motto now is: Live life to the fullest each
day cause you never know if tomorrow will come.
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- Sharon S Calhoun,
s.s.calhoun@juno.com
- I was only 33 years old in 1981 when I had a massive brain stem stroke. Today I can
drive (was without my license for 5 years), I walk with a quad cane and am able to
function pretty much on my own.
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- Shawn Jennings MD,
colshaw@nbnet.nb.ca
- I am a 46 y.o. male physician who has suffered a brain stem stroke in May 1999.
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- Sheri Pherigo,
litefoot@IowaTelecom.net,
Web Page
- Hi I am Sheri Pherigo and a stroke survivor. I had, what was called, a Brainstem Stroke.
I was lucky though, because I wasn't Locked-in. I had a double vetibular dissection. I was
not to live the night....
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- Stephanie and her father Ray
RConrad31@aol.com
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My name is Stephanie, and I would like to share my family's experience with my dad's brainstem stroke.
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- Steve Mallory,
SMallory@strokenetwork.org,
Web Page
- I had my stroke in June of 1994 at age 36. I was in France on business. It paralyzed me
totally, my eyes would not even move side to side. I couldn't talk either.
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- Wim
Tusveld,
Netherlands (Holland),
w.tusveld@zonnet.nl,
Web Page
- I have since May 1996 the locked-in syndrome. Against all doctors advise I go on
with all kind off therapy's, and I think it works out.
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This page's address is http://www.buffnet.net/~billmcm/brainstem/surv-care.html
Please report any problems with this page to me,
Bill McMurray at billmcm@buffnet.net
Copyright © 1999-2000 Bill McMurray.
All rights reserved.
Last Modified: Friday, December 21, 2001
