Post Polio Sytndrome, Polio Information

i> Post Polio Sytndrome, Polio Information

Post Polio Syndrome Information

Revised: Friday, May 31, 2002 10:37:27

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What is Post-Polio Syndrome?Post-Polio Syndrome (PPS) is a condition that can strike polio survivors anywhere from 10 to 40 years after their recovery from polio. PPS is caused by the death of individual nerve terminals in the motor units that remain after the initial polio attack. Symptoms include fatigue, slowly progressive muscle weakness, muscle and joint pain, and muscular atrophy. The severity of PPS depends upon how seriously the survivors were affected by the first polio attack. Doctors estimate the incidence of PPS at about 25 percent of the survivor population. The only way to be sure a person has PPS is through a neurological examination aided by other laboratory studies (for example, magnetic resonance imaging (MRI), neuroimaging, electrophysiological studies, and muscle biopsies or spinal fluid analysis). 6/20/01

Email Web Master (Rick) Copyright 1997 2002 Richard Martinek Created 1997 UpDated MonthlyLiability and Copyright InformationThis web page created and maintain with FREE software, Check these programs.Click Here

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Medical mumbo jumboThere are quite a few funny things going on with medical care and the cost of prescriptions. The FDA has discovered through surveys that patients will walk into a doctor’s office and request medicines they’ve seen on TV without even finding out what’s wrong with them. In the past, the doctor would evaluate the patient and choose a medication based on what the symptoms. But today, 70% of the time the doctor writes the prescription that the patient wants. This is not healthy and not smart. Another trend going on involve doctors being influenced by pharmaceutical companies. The company reps give doctors freebies and take them out to nice dinners to try and get them to use their products. The doctors then push those products on you, when the generic version is available for much cheaper. So, remember that when a doctor tries to push some brand name medication on you. Thirdly, you may have heard about Eckerd’s drug stores using your personal information to push certain products to you over the phone. Basically, this means that Eckerd’s gets a cut of by convincing you to buy a product. Furthermore, these “agreements” between drug companies and pharmacies prohibit the pharmacies from telling you about a medication that may be better for you. So, there are some untoward things going on in the pharmaceutical industry. Remember that most generic prescriptions contain the same ingredients and will work just as well>  6/01/02

The Polio Information Center Online (PICO) provides information about poliovirus, the causative agent of paralytic poliomyelitis and also an important model system for studying viruses in the family Picornaviridae. This family contains viruses which cause such conditions as the common cold, encephalitis, aseptic meningitis, and hepatitis, to name a few. Thus, while the Salk and Sabin vaccines have significantly reduced the threat of paralysis by polio, there are still good reasons to study this virus.   6/1/02

RECYCLED WHEELS OF LOVE Hi! Welcome to our page. My name is Millie Malone and I am one of the founders of Recycled Wheels of Love. Let me tell you about the concept behind this page.   6/01/02

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SendTo 1.5 is here SendTo installs itself in your Windows right-click SendTo menu, giving you the option to send files to any folder on your hard disk or network. You can also send files and folders to FTP servers, and to applications on your computer.  6/01/02

We have now released Selida 2.0, and we are very curious on how you users like it! We think it is the best HTML editor on the net. But, of course, we have made it, so it fits us perfectly. Our beta testers have been overjoyed over the new version's possibilities and flexibility. Selida 2 offers a whole new user interface and we have redesigned all the tools and wizard. The new version is both faster and easier to use. We think this version is the final breakthrough for our beloved editor. The release of Selida 2 is of course the main event, but another small thing is that we have added a possibility to support us, without having to spend any money  6/1/02

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Start of Home Pages.

We are Paul & Marguerite McElroy and we make up Collective Ability, an information resource which has grown out of our own story: Marguerite, an ex-social worker, developed Post Polio Syndrome about 10 years ago ~ and Paul, a medical research scientist, set about looking for what might be of help to her. Paul, who has a PhD in Immunology, has used his scientific expertise to discover well-documented and scientifically rigorous findings about nutrition that have led to Maggi's massively improved health and well being.  4/15/02

Post-Polio Network Z A When I discovered I had Post-Polio Syndrome in 1997 I formed the Post-Polio Network Z A (formerly The South African Post-Polio Syndrome Association) in order to make available all information to those of you who went through what I did and what we are all still going through: The painful indignity suffered over the years of being considered a hypochondriac because of the symptoms we were and are going through and the lack of knowledge and resources available to us.  9/1/01

The Environmental Aspects Of The Post Polio Syndrome The environmental aspects of health and disease are becoming much more clearly defined. The adverse influences of environmental incitants on wounded target organs have often been seen by people working in the area of environmental medicine. Because of these observations a preliminary survey of environmental influences on post polio patients who exhibited the post polio syndrome was done.  9/1/01

Diana Home Page Hello all. I am Diana and I am a 49 year old wife and the mother of a 16 year old son. We live in the edge of the Great Smokey Mountains of Western North Carolina. This is a great place to live, work and play. We enjoy the mountains and the many beautiful streams and waterfalls that are in our area.10/01/01

Harald Hasle'sThis is the introduction to the story about me, my folks, family, friends and an almost unknown disease called "Post Polio Syndrome" (PPS) and some more.  7/1/01

Julia AshleyWelcome to my web site 'Im not 'that woman with callipers (leg braces)' I hope you find something of interest and, if you're disabled, perhaps you'll find something you can relate to.
While you're here you might like to take a look at the Fashion page.
Julia Ashley says, "I'm not 'that woman with callipers.' I'm simply a woman - without the appendage." Julia has a place where you can voice your opinion, post a notice, read a brief description of polio and more.  6/14/01

Hello all. I am Diana I had polio at the age of 4 years and now I suffer with Post-Polio Syndrome. It is a gradual weakening of the nerves and muscles much like the original polio epidemic caused. I am a member of a great PPS list and support group and have met so many wonderful people who are also suffering with PPS.

Resources for people who have Post Polio Syndrome (PPS). Not only informative this site is entertaining and comes complete with an easily accessible chat room so people who have PPS or an interest in PPS can share their experiences and concerns. This is one of the most comprehensive Post Polio Survivors site on the web. It's webmaster who is himself a survivor is careful to pick and include timely and relevant information for his daily updates. He is also constantly searching for quality affordable medical treatment for people in need across the country and is committed to public awareness of this little known or forgotten medical condition. Remember all links and articles on this site are intended for informational use only and ppsr is not responsible for its content.  5/1/01

RECYCLED WHEELS OF LOVEHi! Welcome to our page. My name is Millie Malone and I am one of the founders of Recycled Wheels of Love. Let me tell you about the concept behind this page
If you have used power equipment in working condition, even if it is old, or if you are in need of such equipment, please contact me at: milmal@frontiernet.net  3/10/01

Hi, I'm Steve Smy, nicknamed "The Silver Tongue" by some very dear friends. This site is still being developed so please bear with me until I manage to create something worthwhile.
I was born in Ipswich (in the UK) on the 30th of June, 1957. In 1961, I contracted Poliomyelitis, which was then better known as "Infantile Paralysis", a misnomer in several respects. When I was released from hospital quarantine, it seemed that I had escaped without any consequences.   1/15/01

Jann HartmanThis page is dedicated to all Polio survivors famous or not, many who are now facing the second half of their lives with a condition known as Post Polio Syndrome...unfair as that is...and are joined by others who also had Polio, but who are just a little more recognizable...   1/25/01

Welcome to Philip's Quick Start Post Polio Information Website. If you have an interest in The Late Affects of Poliomyelitis, this website will be of interest to you.   10/17/00

Pat's Home Page I hope this page will help all those who are looking for information on Post-Polio Syndrome, in understanding what is happening to you.
Feel free to link this page to yours, if you would like, but please let me know where, so that I can see your homepage as well.
Thank You...   8/24/00

Welcome! My name is Robert M. (Bob) Lantrip and my wife is Deloris M. (Sue) Lantrip. We've been married since July 27, 1962, have two children, 6 grandchildren (number seven is on the way) and one great-grandson.   6/1/00

The new nickname of "CelticWings" This page is dedicated to us Polio Survivors Who once fought and vanquished the dragon and now must fight again... While the world believes dragons are a pre-vaccine myth. 42/1/00

Jack Schwartz "Cactus Jack Hi. I am a retired chemist and chemical engineer living in my boyhood hometown - Weatherford, OK. I am an advocate for people with mental illness and with post polio syndrome, both of which are afflictions I deal with myself.   2/16/00

One Survivor's Story by Sandy Goldstein a Polio Survivor As I reached my 50th year of surviving, I began to think back and examine my life as a child, and reflected on how those events affected my adult life. 01/24/00

Christopher J. Rutty, Ph.D I'm a polio historian who did my Ph.D. on polio in Canada and I have recently developed a polio history resources website. | History of Polio in Canada,| Featured Resources , C.J. Rutty's Polio History Bibliography and Other Resources.11/1/99

Norman's Polio Board I would like to hear from any Polio Survivors in Southern England. Please leave a message 12/31/98

Granny is Off Her Rocker! I am a polio survivor who is now experiencing the late effects of polio, or Post Polio Syndrome. This is characterized by fatigue, new muscle weakness and pain. 9/1/98

Post-Polio Network (NSW, Australia) INC . The Network was established officially in 1989 to support people who have had polio and who may be experiencing its late effects. 2/20/98

Grace Young's Energy Conservation Web Page. As a polio survivor and a occupational therapist at Kaiser-Permanente in Southern California I had the opportunity to develop and teach educational programs to several hundred polio survivors over a period of several years Each month there will be a new topic relating to conserving your energy, simplifying your work, protecting your joints, or modifying your surroundings - anything which might help to lessen the symptoms of pain and fatigue. 1/19/98

Francisco de Sales Escribano Rubio has a well done site (in Spanish). We are taking this is a Home Page? 9/16/97

Pauls -Page I have a web site and would appreciate anyone looking at it. I am still working on it and making changes. I have not finished yet. 9/16/97

Leicestershire Post Polio Page Hi everyone I hope that you will all have time to visit our new site. 9/16/97

Tim Zingale as updated his web page with articles he wrote for his Iowa polio support group.

David Brock has set up a Web Page with pictures of polio survivors from the Inter net Polio Mail List and Chat Channel. Go see POLIO SURVIVORS FRIENDS.

End of home pages.

Start of mailing list.

The lists are complimentary and each has a different focus.

polio@maelstrom.stjohns.edu - Caring support in a friendly environment.

post-polio@egroups.com A laid-back low-key, no-beefs list

post-polio-med@maelstrom.stjohns.edu Medical aspects of PPS.

polio-groups@makelist.com Support group information exchange.

pps-cg@makelist.com- For PPS caregivers.

poliontario@eGroups.com- A set of (intentionally) small lists.

subpara-pps@egroups.com A forum for those with a "sub-paralytic" polionbsp diagnosis now suffering PPS.

The St. John's University list is a private moderated subscription based forum. Subscription to this list is conditional on accepting and working within a set of guidelines provided at the time of subscription. The intent of the list is to "Serve two purposes: To supply information, and to provide support and friendship in an informal and friendly environment.
To subscribe send an e-mail to listserv@maelstrom.stjohns.edu with a blank subject line and sub Polio your firstname yourlastname in the body of the message.

Tom McKeever has movedhis long standing Post-Polio FIDONET Echo to the Internet, although the FIDONET echo itself still remains active.As a service to the FIDONET folks who have Internet access, we had established a Moderated List-Server at "pps@pmihwy.com". Effective 8 May, 1999, this list has moved to a NEW home - One with many more features and flexibility at: post-polio@egroups.com " This List is ALSO a "controlled" list, in that rules are established, and WILL be enforced.
The Egroups home is unique and an exciting improvement, with the capabilities for Chats, On-Line Scheduler, Co-Moderators, User Home pages and Photo-Galleries, File and Picture transfers and much more!

Hi everybody;There's a new Post-Polio list just starting up.It's all about the medical aspects of post polio syndrome. As more of us get on, it will become a great place to get answers to our medical questions. The part that excites me the most about this new list, is that our questions, and answers to them, are all being archived. The archives don't have much in them yet (because it's so new), but they're growing. They are real easy to use, you just type in your search word. So, if you want to know the xiphoid from xylocaine, and that from a xylophone, this would be a good place to look. You'll probably want to bookmark the archives, they're at:http://maelstrom.stjohns.edu/archives/post-polio.html
And here's the "official poop" about the e-mail list:Post-Polio-Med is a forum for questions and answers to and from post-polio syndrome researchers, physicians and other post-polio syndrome medical professionals, polio Survivors, family, friends, students and others who are interested in post-polio syndrome.
This includes, but is not limited to: questions, answers and information about post-polio syndrome research, clinical issues, clinical trials and current treatment practices.
For more info on Post-Polio-Med, go to the Post-Polio-Med Web Page:
http://www.skally.net/ppmed/
To subscribe send an email to:listserv@maelstrom.stjohns.edu in the message enter:sub post-polio-med YourFirstName YourLastName

A caregivers E-mail list is now available for those who love and care nt forpeople with PPS. The purpose of this group is share experiences,questions, joys, and sorrows as we care for those who are suffering withthis illness.
To subscribe send an e-mail to pps-cg-subscribe@makelist.com >or to the list owner at gutz@alltel.net

End of chat groups.

Start of Doctors.

What's up with your doc? Before you choose a physician, check the Web to evaluate the record By Lauren Wiley June 18 - June 24, 2000
When a doctor walks into the examination room, the first thing he or she does is glance at your medical history chart. But what if you had a chart on your doctor?
Checking on professional credentials is another way the Web is altering the social terrain. While your physician may chafe at the idea, it's now possible to know as much about doctors as they know about you.
"It's absolutely the consumers' right to know," says Sarah Loughran, senior vice president of HealthGrades.com, which provides access to doctors' professional histories. Consumers can view doctors' educational backgrounds, disciplinary records and the site's rating for the hospitals where they practice. However, mentions of disciplinary sanctions on the site lack necessary detail.   6/19/00

Use of MICATION in people with POST-POLIO SYNDROME By: Susan Perlman,M.D or University of California, Los Angeles(UCLA) 9/01/99

Dr. Richard Bruno is a Clinical Psychophysiologist specializing in pain and fatigue management, biofeedback and Post-Polio Sequelae (PPS). 9/1/99

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Start of Government.

Welcome to FirstGov — the first-ever government website to provide the public with easy, one-stop access to all online U.S. Federal Government resources. This cutting-edge site gives the American people the "Information Age" government they deserve. By using the wonders of information technology to bring government closer to the American people, we can expand the reach of democracy and make government more responsive to citizens   11/1/00

The Department of Justice oversees matters related to the Americans with Disabilities Act. The link in the following address will take you to the DOJ's ADA site, where you can obtain a wealth of information straight from the horse's mouth. (That information includes how to file a complaint.)   7/1/00

Welcome to the Federal Communications Commission's Disabilities Issues Task Force Home Page on the World Wide Web. As Chairman of the Federal Communications Commission and of the Disabilities Issues Task Force, I am committed to ensuring that the telecommunications revolution does not become segregated, between "halves" and "have nots". People with disabilities must have equal access to the information age; the Federal Communications Commission has an obligation to ensure that telecommunications are accessible and usable to the 54 million Americans with disabilities. Equal telecommunications access, by breaking down barriers and accelerating progress towards full participation, is critical to our nation's success. The curb cut to the twenty-first century is technology and every American should have equal access to this tool.

I have appointed Meryl Icove to be the Director of the Disabilities Issues Task Force. I encourage you to contact her if you have any concerns, questions, suggestions or ideas on how I can advance the opportunities for Americans with disabilities. 1/31/99

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Start of medical.

Can't Afford Your Prescription Medication? Free Prescription Medicine is Available to those who Qualify Welcome to The Medicine Program! This organization was established by volunteers dedicated to alleviating the plight of an ever increasing number of patients who cannot afford their prescription medication. Find out more about our service and how you could benefit from this progam   9/1/00

St. John's Wort(St. John the Baptist, not the Beloved). "How to Heal Depression," links to other sites, the latest news and information on Hypericum, and the Hypericum Forum, our Hypericum and Depression discussion In Germany, more than fifty percent of depression, anxiety, and sleep disorders are treated with hypericum. Prozac has two percent.2/14/98

National Library of Medicine'sWorld Wide Web site. Every significant program of the Library is represented, from medical history to biotechnology. We hope that the resources of the world's largest biomedical library will find ever wider useful application around the nation and around the world.

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Start of newsletters.

P.E.N .Polio Experience Network Newsletter. Inspiration, news and knowledge from Polio Experience Network.Our aim: to provide experience based advice and emotional support for polio survivors, families and friends.  5/14/01

Post-Polio Network (NSW, Australia) INC.The Network was established officially in 1989 to support people who have had polio and who may be experiencing its late effects. 07/01/98

There is a list of recent medical articles on post-polio syndrome.

The Lincolnshire Post-Polio NetworkAn Information Service for Polio Survivors and Medical Professionals.

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Start of related.

Post-Polio Directory 2000: U.S.A. The physicians and medical centers ("post-polio clinics") listed on this Web site have identified themselves as having a special interest in post-polio problems. Most offer comprehensive neurological and/or rehabilitative services. (Click here for a brief general description of possible approaches of a post-polio clinic www.post-polio.org/ipn/who.html) These centers are marked with a {CLN} by their listing.

The Web site also includes self-identified individual health professionals (and their area of medical specialty) knowledgeable about the late effects of polio. These professionals are marked with a {HP} by their listing. 4/19/00

The latest medical news and information on Pain Management Chronic Pain: Hope Through Research Managing Pain -- Attitude, Medication And Therapy Are Keys To Control Caution: Pain Behavior Can Become Addicting 12/1/99

POLIO SURVIVORS' MARKETPLACEOn this page you will find links to the various services and merchandise that we polio survivors have to offer. Many of us have limited ability to work, so we supplement our incomes with home-based businesses. Others just have some extra items they want to sell. Click on the links to go to the designated webpages or send an email by clicking on the little icon beside the description. 10/1/98

Johns Hopkins University School of Medicine Infectious Diseases site to provide your site visitors with information about Polio and other infectious diseases. Johns Hopkins site provides the latest on antibiotics, vaccines, infection control, primary care, faculty contact information and other valuable information for patients with infectious diseases and their caregivers. 3/7/98

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Start of Feature Site.

Elber's Place I had polio when I was 13 months old. I bring it up for one reason. There are a tremendous number of Web sites on the Internet dedicated to helping people. The amount of information some of them contain is amazing.
You can find historical information, updates on the latest medical research, definitions, case studies, and personal testimonials.
Perhaps most important, if you are looking for answers, you'll discover you are not alone, and that there are people out there willing to listen and to help.
There are support groups and chat channels on any subject you can imagine - polio, AIDS, cancer, muscular dystrophy, alcoholism, drug abuse, depression - the topics are endless. Help is out there if you want it.

End of Feature Site.