Help for children with HIV and their families is on the way.
Compiled by Carola Burroughs
Children with AIDS Project of America
P.O. Box 83131
Phoenix, AZ 85071
Helps match HIV positive children with foster or adoptive families.
Just Kids Foundation
P.O. Box 42
New York, NY 10014
Emily Gordon, 212.627.3390, or Marlene Diaz, 212.243.6653.
Advocacy and self-help strategies for parents and HIV
positive children. Publishes newsletter and offers phone support.
Pediatric HIV Psychosocial Support Program, National Cancer
Dr. Lori Weiner, Coordinator
Bldg. 10, Rm. 13N240
Bethesda, MD 20892
Psychosocial support services for children and families
participating in clinical trials, including travel and accommodation
arrangements for children, case management, support groups and
PWA Coalition/New York
offers toll-free phone peer support by mothers of children with HIV nationwide, Mondays, Wednesdays and
Fridays, 2-6 p.m. EST. 800.828.3280 or 212.647.1420.
The Whitney Project
P.O. Box 2511
Santa Fe, NM 87504
Pairs HIV positive children with a classroom of
children living in another area, who provide support through
letters, phone calls and more.
Association for the Care of Children's Health
7910 Woodmont Ave., Suite 300
Bethesda, MD 20814
800.808.2224 or 301.654.6549
Internet home page: www.wsd. com/acch.org.
Membership organization of parents and
professionals concerned with humanizing family health care. Provides
advocacy, education, publications and videos.
Be a Friend: Children Who Live with HIV Speak
compiled by Lori Weiner, Ph.D., Aprille Best and Philip A. Pizzo, M.D. A book of
writings and drawings by HIV positive/affected children. Available
from Pediatric AIDS Foundation (see listing below).
Because You Love Them
by the Child Welfare League of
America; a parents' planning guide that helps families explore
feelings about AIDS and assists with permanency planning.
Available from the
CDC National AIDS Clearinghouse
P.O. Box 6003
Rockville, MD 20849
Child Life News
newsletter, Gay Men's Health Crisis, Child Life Program
129 West 20th St.
New York, NY 10011
440 Cerrillos Suite F
Santa Fe, NM 87501
hotline in English, Spanish and Tagalog: 415.863.AIDS.
Distributor of San Francisco AIDS Foundation materials.
National Pediatric and Family HIV Resource Center
15 S. 9th St.
Newark, NJ 07107
800.362.0071 or 201.268.8251
Provides consultations with health practitioners,
technical assistance and training; public policy advocacy. Extensive
list of resources, including Jimmy and the Eggs Virus, a booklet
about a child who learns he is HIV positive.
Pediatric AIDS Foundation
1311 Colorado Ave.
Santa Monica, CA 90404
National organization that funds
pediatric HIV research and sponsors public education and school
programs, especially dealing with disclosure issues.
P.O. Box 4512
Queensbury, NY 12804
Education and support services for families, friends and service
providers of children and adolescents living with HIV; speakers
bureau; public policy advocacy; newsletter.
State of the Art
4455 Connecticut Ave., N.W.
Washington, DC 20008
800.790.9267 or 202.537.0818
Produces videos: What's Best for You: Families Talk About Disclosure; You're
in Charge, health consumer tips for parents of children with chronic
illness. Also Video Series About Health Care for Haitian Families
RECREATIONAL & GIFT PROGRAMS
(All camps listed provide medical care.)
Birch Summer Project
Herbert G. Birch Services
145-02 Farmers Blvd.
Springfield Gardens, NY 11434
Free residential camp providing recreation and developmental aid for
children up to age 21, and respite, recreation, support and Training for their
caregivers. Wheelchair accessible. Spanish spoken.
4565 N. Green Bay Ave.
Milwaukee, WI 53209
Residential camp offering three sessions for
HIV-impacted children in several locations around the country; open
to children nationwide. Camp and transportation free to all
Double H Hole in the Woods Ranch
RD #2, Box 228
Lake Luzerne, NY 12846
Summer camp located in rural New
York with free weeklong program for children with HIV.
Transportation costs not covered, but NY/NJ-area hospitals charter
Grant A Wish Foundation
P.O. Box 21211
Baltimore, MD 21228
For children under 18 with life-threatening
illnesses. Nationwide programs include: Beach and Mountain Retreats
-- free, fully equipped cabins and condos in northern Virginia for
HIV-impacted families; and Support Group Sponsorship -- helps fund
activities or meetings of support groups.
Make A Wish Foundation
100 West Clarendon, Suite 2200
Phoenix, AZ 85013
Grants wishes to children under 18
with life-threatening illnesses.
Sunburst National AIDS Project
P.O. Box 2824
Petaluma, CA 94953
Weeklong residential camp
for HIV-impacted families, located in the Sierra Nevada foothills.
Camp and transportation free, but only six "camperships" per year
available to out-of-state families.