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Newsletter - Rallying Points Eastern/Southern Region E-Newsletter - August 2003


Welcome to Adobe GoLive 6

Rallying Points E-Newsletter

Welcome to the Eastern-Southern Regional edition of the Rallying Points E-Newsletter! The Rallying Points E-Newsletter is a bimonthly electronic publication intended to keep you informed of news and events related to end-of-life care issues in your region and across the country.

Our mission is to encourage coalitions to identify community needs for better care near the end of life, advocate for health system changes to bring about better care and develop specific projects that support dying people and their families.

For more information about Rallying Points, visit our Web site at www.rallyingpoints.org. Please send information about news and events in your area to rallyingpoints@partnershipforcaring.org for inclusion in the e-newsletter.

Please Note: Some links in this newsletter may require Adobe Acrobat Reader in order to view PDF documents. Adobe Acrobat Reader can be downloaded for free at www.adobe.com.

In This Issue…

  1. 2003 Rallying Points National Conference Registration Brochure Available!
  2. Free Resources for Coalitions
  3. News Worth Repeating!
  4. Carolina Advance Care Planning Summit
  5. Respecting Choices® Seminar in Florida
  6. Innovative Western Massachusetts Partnership to Improve End-of-Life Care initiative featured in Newspaper article
  7. Winston-Salem Coalition Work Recognized in Circle of Life Award
  8. Coalitions Focusing on Caregiving Issues
  9. Rural Coalition Holds Successful Retreat

1. 2003 Rallying Points National Conference Registration Brochure Available!

Rallying Points and The Hospice of the Florida Suncoast have created an exciting line-up of end-of-life care experts and community coalition leaders for the 2003 Rallying Points National Conference, November 16-18, at Boston’s Park Plaza Hotel.

The conference registration brochure, coming to you soon via mail and online at www.rallyingpoints.org, provides detailed information about conference events and speakers scheduled throughout each day of the conference.

The Rallying Points 2003 National Conference provides an excellent opportunity to learn skills, share information and explore new ways to enhance outreach efforts and visibility. This free conference provides a valuable opportunity to network with coalition leaders.

A limited number of travel stipends are available to qualified Rallying Points coalition members.

To register for the conference or to inquire about travel stipends please contact: Stewart Communications at 312-751-0147 or visit the Rallying Points Web site at www.rallyingpoints.org.

2. Free Resources for Coalitions

The free resources on The Hospice of the Florida Suncoast’s Rallying Points web page have been frequently downloaded by visitors to the site. More than 500 people have downloaded the two most popular resources, “Communicating End-of-life Issues” and “Starting and Maintaining a Successful End-of-life Coalition.” New resources and information are posted on the web site each month. Visit www.thehospicerallyingpoints.org for information, resources and a list of upcoming regional and national events.

3. News Worth Repeating!

Congratulations to the The Carolinas Center for Hospice and End of Life Care! In conjunction with AARP-NC, they sponsored Advancing End of Life Care in North Carolina, a statewide forum to discuss the first-ever statewide consumer survey on end-of-life care. The event, held on July 16, had more than 160 participants in attendance. The survey results and the event received both newspaper and television media coverage. The survey report and tools for the media are available at www.carolinasendoflifecare.org/hospice/whatsnew.html. Hospices and end-of-life coalitions are encouraged to use the contents of the media kit as templates – you can tailor them to reflect your community-specific information.

Upcoming Events

4. Carolina Advance Care Planning Summit

The Carolinas Center for Hospice & End of Life Care (NC & SC) will present an "Advance Care Planning Summit: Bringing Vision into Focus" featuring William Colby, JD, author of Long Goodbye: The Deaths of Nancy Cruzan - Sept. 25 in Columbia, SC, and Sept. 26 in Cary, NC. The purpose of the summits are to network advance care planning educators in each state, highlight best practices and develop strategies to educate and promote advance care planning in local communities. Since initiating the "Respecting Choices" advance care planning facilitators curriculum in 2001, over 1000 health care professionals and community leaders in both states have been trained. For more information, contact Gwynn Sullivan in NC at 919.677.4117 (gsullivan@carolinasendoflifecare.org), or Tamra West in SC at 803.791.4220 (twest@carolinasendoflifecare.org).

5. Respecting Choices® Seminar in Florida

The Hospice of the Florida Suncoast is hosting the Respecting Choices® Advance Care Planning Course with Instructor Certification trainings in Largo, Florida September 29-October 2, 2003. Course descriptions and registration information are available at www.gundluth.org/eolprograms#4

For more information and registration contact labriggs@gundluth.org or call 1.800.362.9567, ext. 55279 or 1.608.782.7300, ext. 55279.

Program Objectives

By the end of the Respecting Choices® Organization and Community Advance Care Planning Course, each participant should be able to:

  1. Describe the necessary system changes in implementing an organization and community wide advance care planning program.

  2. Participate in the development of a specific organization/community implementation plan.

  3. Participate in dialogue regarding personal and ethical issues relative to end-of-life treatment decisions.

  4. Those who complete the certification will also be able to organize and teach the Respecting Choices® Advance Care Planning Course for Facilitators in their community.

Coalition Happenings

6. Innovative Western Massachusetts Partnership to Improve End-of-Life Care initiative featured in Newspaper article

The Daily Hampshire Gazette featured an article about Susannah Crolius and the Western Massachusetts Partnership to Improve End-of-Life Care. Below is an excerpt. To read the entire article, visit www.gazettenet.com/06302003/entertai/7125.htm.

7. Winston-Salem Coalition Work Recognized in Circle of Life Award

Congratulations to the Hospice & Palliative Care Center of Winston-Salem, NC, one of three recipients of the American Hospital Association’s Circle of Life Award for 2003. The Award celebrates innovation, creativity and the expansion of boundaries in palliative and end-of-life care. With the goal of transforming the community culture of dying, the Care Center created the Community Partnership for End of Life Care (a Rallying Points coalition) in 2000 and the Pediatric Community Alliance in 2001. The Partnership and Alliance membership rosters now include nearly 250 community organizations and individuals and is a virtual “Who’s Who” of community champions committed to improving end of life care.

Early on, Hospice & Palliative Care Center’s leaders recognized that to be effective, they had to take a multi-pronged approach.. “We saw two parallel needs: community awareness of the opportunities offered by palliative and hospice care, and a health system that supported those choices,” says JoAnn Davis, president and CEO. The Partnership’s mission to “encourage conversations about end of life care” seems simple but implies a community-wide, comprehensive strategy.

“We try to bring together naturally occurring groups and businesses, such as congregations, social service agencies, retirement communities, lawyer’s groups and healthcare professionals where end of life conversations often take place,” says Dee Leahman, director of education and program development. “They’re helping move the end of life conversation upstream – a critical factor in improving end of life care. Working together, these groups are connecting the community to an openness and receptivity to the mission of hospice in a way we’ve never seen before.”

8. Coalitions Focusing on Caregiving Issues

Several Rallying Points coalitions have invested in caregiver education and support this year by attending the Caregiving at Life’s End National Train-the-trainer Program at The Hospice of the Florida Suncoast. Congratulations to the following coalitions for completing the training:

  • Clay Center Caring Communities Council, Clay Center, KS
  • Partners for Progress in End-of-Life Care, Burlington, NC
  • SOLACE, Fairfax, VA
  • Illinois Coalition for Improving End-of-Life Care, Alton, IL

We look forward to meeting those registered for the August training:

  • A Better Way: Life On Our Own Terms Coalition, Boise, ID
  • Tri County End-of-Life Coalition, Charleston, SC
  • Grand Island Coalition for End-of-Life Care, Grand Island, NE
  • Santa Cruz County End-of-Life Coalition, Aptos, CA

The free training provides coalitions and agencies with a comprehensive caregiver training curriculum designed specifically for people caring for someone in the last years of life. Attendees also receive outreach materials to support a caregiver initiative and market the local caregiver trainings. Two new weeklong train-the-trainer sessions have been scheduled for early 2004. For more information go www.thehospice.org/caregiv.

9. Rural Coalition Holds Successful Retreat

The Northeast Kingdom Palliative Care Initiative (NEKPCI) in Newport Vermont held its third annual retreat on Friday, August 8. Mike Bell, Vice President at The Hospice of the Florida Suncoast and Advisory Committee Member of The Hospice’s Rallying Points Regional Resource Center, was the lead speaker and facilitator.

NEKPCI is a rural community coalition of health care providers and community members working to build a community-based model of end-of-life care that incorporates the hospice philosophy and creates a community standard of care for pain control, emotional and spiritual support that exists in all facilities where death may occur. The annual retreat is an opportunity for members of all participating organizations (hospital, nursing homes and hospice) to come together with members from the clergy, community and physicians to engage in an educational program. The day also offers an opportunity to review ongoing projects, process feedback from an annual community survey and consider future activities. The local Area Health Education Center provides continuing education credits for the day.

Part of this year's retreat focused on bereavement support services, including the use of the resource pamphlet developed by the group over the past year as well as the upcoming program utilizing a Rallying Points Certificate, the Gunderson-Lutheran Medical Foundation Bereavement Training.

NEKPCI is truly a rural model of end-of-life coalitions and this was reflected in its retreat. Speaker Mike Bell commented: "I have spoken under many conditions, but this was the first time I had to compete in volume with chickens." NEKPCI is very interested in networking with other rural coalitions (contact Denise Niemira nekpci@sover.net for more information).

Date Submitted: 8/22/2003