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Sharon L. Monsky, 1953-2002


Luke Evnin, PhD, Chairman
Nancy H. Bechtle
Ronald J. Carminati
Dana Delany
Susan Feniger
Bob Saget
Deann Wright
Caryn Zucker


Bruce Alberts, PhD
National Academy of Sciences

David Botstein, PhD
Princeton University

Shaun R. Coughlin, MD, PhD
UC San Francisco

Susan Desmond-Hellman, MD

Regis B. Kelly, PhD
UC San Francisco

Henry Metzger, MD
National Institutes of Health

Antony Rosen, MD
Johns Hopkins University

William J. Rutter, PhD
Synergenics, LLC

Bruce U. Wintroub, MD
UC San Francisco

George Yancopoulos, MD, PhD
Regeneron Pharmaceuticals



New York Cool Comedy — Hot Cuisine: Stellar Success!


In early November, Cool Comedy — Hot Cuisine returned to Carolines on Broadway and raised nearly $900,000 to support groundbreaking research initiatives. Actor/comedian Bob Saget hosted the flagship fundraiser and awareness-building event featuring appearances by Susie Essman of HBO’s Curb Your Enthusiasm, Saturday Night Live’s Jimmy Fallon, comedian Gilbert Gottfried, Academy Award® winning actor and comedian Robin Williams and other special guests. Celebrity chefs Susan Feniger and Mary Sue Milliken of Food Network’s Too Hot Tamales provided the Latin-American themed “hot cuisine.” In total, more than 400 supporters helped to raise funds that will help find a cure. Thank you to everyone who participated. The SRF extends a special thank you to Actelion Pharmaceuticals for their generous presenting sponsorship and for providing a matching grant that raised more than $100,000.

The next Cool Comedy – Hot Cuisine benefit is scheduled for early spring in Los Angeles. More information will be available soon.

SRF News & Events:
2007 Annual Report

The Scleroderma Research Foundation is pleased to make its 2007 Annual Report available for download as an Adobe PDF file. Included are the Foundation’s 2007 achievements, financial information, donor and tribute listings and compelling stories of courage and commitment from scleroderma patients, researchers, advisors and volunteers. Please click here to download the entire 48-page document. (Note: This is a large file and may take several minutes to download depending upon the speed of your Internet connection.)

Research Funding Levels

The Scleroderma Research Foundation (SRF) has become the nation’s largest private investor in scleroderma research, raising more than $22,000,000—with every dollar coming from charitable gifts from generous individuals, corporations and foundations. In 2007, the SRF has provided more than $1,085,000 in direct research grants. Unlike university and medical foundations restricted to one institution, the SRF actively searches out the most promising researchers and laboratories aimed at helping scleroderma patients around the world. We are now funding research at Johns Hopkins, Harvard, Stanford, and Dartmouth; and helping the University of Washington launch a new Puget-Sound based research program. A list of funded research is described in the 2007 Annual Report. To make a contribution, please click here.


There is currently no cure for scleroderma but,
in many cases, it can be managed.

About us:

The Scleroderma Research Foundation is a 501(c)(3) nonprofit organization whose mission is to find a cure for scleroderma by funding and facilitating the most promising, highest quality research and by placing the disease and the need for a cure in the public eye. Information provided by the SRF should not be considered medical advice, nor is it intended to replace consultation with a qualified physician. The SRF does not evaluate, endorse or recommend any particular medications, products, equipment or treatments. Scleroderma varies substantially from one patient to another, and treatment must be tailored by a physician for each individual case.
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