This web is for anyone seeking information
about the rare genetic disorder nemaline myopathy. If you have NM, or
you are a parent, guardian, professional or friend who cares for someone
with it, then there are new friends out there who wish to hear from you.
Learn from those who know the game.
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The official encyclopaedia for NM |
Born: July 18th, 1999 |
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Uniting families, doctors, support professionals and
scientists.
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Email
Chatgroups |
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To date, over 450 people have contacted me from 41 countries. See Around the world for a breakdown. Argentina, Austria, Australia, Bahrain, Brazil, Burma, Canada, Chile, Cuba, Denmark, England, Estonia, Finland, France, Germany, Greece, Ireland, India, Iran, Israel, Italy, Korea, Latvia, Malaysia, Netherlands, Norway, New Zealand, Pakistan, Panama, Romania, Saudi Arabia, Scotland, Senegal, South Africa, Spain, Sweden, Switzerland, Turks & Caicos Islands, Uruguay, USA and Wales. |
This is NOT a medical site. It
is intended for informational purposes only.
Please contact your medical professional if you have questions about your
specific condition.
Links on this site have been included as areas of possible interest. I cannot
vouch for the accuracy or suitability of information you may find on them,
or on sites linked to them. Information may concern prognoses and must be
treated with sensitivity. Be VERY wary of any site that offers treatment or
cures and always ask for independent, professional medical advice before you
contact a site of this type. If you are not medically qualified and find an
item that worries you please discuss it with your doctor.