PCNG's 100+ LINKS    (add a link)  Glossaries: Phoenix5  & PCRI

-- A- Internet Info Sites  General Medicine ---
1  -   Medline Plus (drugs, med. encyclopedia, dictionary)
2  -   The Merck Manual of Diagnosis and Therapy - Table of Contents
3  -   www.medicalstudent:
superb collection of medical URLs
4  -   Mayo Clinic Diseases & Conditions superb!
5  -   Medscape - you have to register (easy)
6  -   eMedicine - registration is needed; for both patients and doctors; excellent
7  -   MedicineNet.com
8  -   WebMD

--
B- Internet Info Sites   Government ---
1  -   Prostate Cancer Treatment (PDQ), National Cancer Institute - both Patient & Health Professional PDQ versions
2  -   "What you Need to Know about Prostate Cancer" (NCI publ. 05-1576)
3  -   "Treatment Choices for Men With Early-Stage Prostate Cancer" (NCI)
4  -   PUBMED (aka Medline):  64,000+ abstracts of medical papers on Prostate Cancer (January, 2008)
5  -   Medline Plus - Prostate Cancer
6  -   Nat. Library Med. GATEWAY abstracts of journals and meetings, etc.
7  -   Clinical Trials  1,148 trials on prostate cancer (January, 2008)

8  -   Prostate Cancer  - CDC (Center Disease Control & Prevention)

9  -   Screening - CDC's Sharing the Decision Slide Set

10  -   Center for Prostate Disease Research - Dept. of Defense

-- C- Internet Info Sites   Prostate Cancer Organizations ---
1  -   NPCC: National Prostate Cancer Coalition; subscribe to their newsletter Aware
2  -   PCRI - Prostate Cancer Research Institute - quarterly newsletter 'Insights'
3  -   Prostate Cancer Research - Medical Database - weekly newsletter
4  -   ACS - American Cancer Society; Detailed Guide: prostate cancer
5  -   USRF - Urological Sciences Research Foundation (Dr. Marks, Culver City, CA)
6  -   PC-REF (Dr. Barken) - San Diego, CA
7  -   The Cancer Information Network
8
  -   Prostate Cancer Foundation (formerly CapCure; Mike Milken Chairman)
9  -   ASCO American Society of Clinical Oncologists - search here for abstracts
10-   AUA American Urological Association
11-   PCI  Prostate Cancer Institute - links patients with urologists

-- D- Internet Info Sites   Patients ---
1  -   Phoenix5 (most visited site on prostate cancer –  Robert Young+);
2  -   PHP-Patients Helping Patients (Don Cooley); 2a Gleason Score
3  -   Prostate Pointers (USTOO - Gary Huckaby, Nancy Peress)
4 -    Malecare for Men Fighting Cancer, in 7 languages –  Darryl Mitteldorf
5  -   The Hypertext Guide to Prostate Cancer (well-organized –  Bill Dyckes)
6  -   YANA =You Are Not Alone –  Terry Herbert
7  -   For patients with Hormone Refractory Prostate Cancer –  Robert Benson+, Howard Hansen
8  -   Prostate Cancer site for men interested in Active Surveillance - Terry Herbert
9  -   The World according Squarf  –  some love, others hate this site
10 -  The Prostate Net  –  Virgil Simons

-- E- Internet Info Sites   MDs and their Clinics ---
1  -   Drs. Scholz , Bahn & Lam  - Prostate Oncology Specialists (LA, CA)
2  -   Dr. Charles Myers -  Am. Inst. Diseases Prostate (Earlysville, VA)
3  -   Drs. Blasko, Grimm, et al. - Seattle Prostate Institute (Seattle, WA)
4  -   Dr. Critz (RCOG) - brachytherapy (Atlanta, GA)
5  -   Dr. Michael Dattoli - brachytherapy (Sarasota, FL)
6  -   Dr. Arnon Krongrad - laparascopic RP (robotic -AESOP) with video from 700 Club (Miami, FL)
7  -   Dr. Leibowitz - Triple Hormone Blockade (LA, CA)
8  -   Dr. Doug Kelly - HD brachytherapy (Tulsa, OK)
9  -   Dr. Jeffrey K. Cohen - Prostate Cancer Treatment Guide
10-   Dr.
Gerald Chodak - Video only! Comprehensive and evidence-based.

-- F- Internet Info Sites   Presentations (Powerpoint, Flash, PDF, video) ----
1  -  Huggins Lecture Series (Chicago) 8 lectures, excellent indeed - Dr. Donald v.d. Griend
2  -  31 Powerpoint Presentations from PCRI -- Download Powerpoint viewer
3  -  47 on-line slides: Sharing the Decision CDC (excellent)
4  -  video of Radical Retropubic Prostatectomy (RPP)- excerpts from a free DVD (Brady Institute)
5  -  video of RPP in  Thomas Jefferson University Hospital, Philadelphia (PA)
6  -  video of RPP in
Trinity Mother Frances Health System's CASAT, Tyler (TX)

-- G- Internet Info Sites   Hospitals, Clinics, & Laboratories ---
1
  -   Brady Urological Institute, Johns Hopkins Hospital, Baltimore (MD)

2  -   MDA (MD Anderson, Houston, TX)
3  -   MSKCC (Memorial Sloan-Kettering Cancer Center, (NYC, NY))
4  -   Mayo Clinic (Rochester, MN)
5  -   Vattikuti Urology Institute - known for robotic laparoscopic RP (Detroit, MI)
6  -   Dr.Slawin.com: Texas Prostate Center (Baylor Prostate Center)
7  -   'Oncolink' (Abramson Cancer Center of the Univ. of Pennsylvania)
8 -    Bostwick Laboratories - PCa3 test, 2nd opinion biopsies (Glen Allen, VA)
9  -   Prostate Laboratory Dr. Jon Oppenheimer - pathology/diagnosis (Nashville, TN)

-- H- Internet Info Sites   Miscellaneous ---
1  -   Prostate Info (Astra-Zeneca -slick!!)

2  -   Centerwatch lists 603 trials on prostate cancer (March, 2008)
3  -   Medstory - search engine, cf. PubMed
4  -   Non-Traditional Therapies (ACS)

-- I-  Other Lists with Prostate Cancer Links ---
1  -   Cancer Lists (Alexandra Andrews, CA, USA)
2  -   Guide to Internet Resources for Cancer (
Simon Cotterill, New Castle, UK)
3  -   Links page of PCRI: Prostate Cancer Research Institute
4  -   PCa Commentary of the Seattle Prostate Institute
5  -   Links of the NASPCC: National Alliance of State Prostate Cancer Coalitions

 

-- J- Mailing Lists & Forums ---
1  -   PPML (Prostate Problems Mailing List) - the grandfather of all prostate cancer mailing lists
2  -   Prostate-Help Forum Index (Don Cooley)
3  -   Mailing Lists on Prostate Pointers: P2P (Patient to Physician (P2P,  Patients post questions and Prostate cancer doctors answer); The Circle (The Circle provides support for wives, families, friends of men with prostate cancer)
4  -   Forum for HRPCa patients (cancer is not responsive to hormonal therapy)
5  -   ACS (American Cancer Society) Message Board on five prostate cancer topics
6  -   EPCEL-Ne Great Mailing List for those among us who read Dutch


-- K- Books, Book Chapters and Articles ---
1a  -   Report to the Nation on Prostate Cancer: A Guide for Men and their Families September 2005, from the Prostate Cancer Foundation - excellent!  (PDF)
1b -    Report to the Nation on Prostate Cancer: Focus on Advanced Disease September 2005, from the Prostate Cancer Foundation - excellent!  (PDF)
2  -    Dr. Strum's chapter on prostate cancer in Life Extension's Disease Prevention and Treatment  (2004)
3  -    Prostate Cancer Primer by Donna Pogliano morphed into a book, not on line, by Dr. Stephen Strum and Donna Pogliano: "A Primer on Prostate Cancer - The Empowered Patient's Guide” , This book can be bought at Amazon.
4  -   Making the Choice: Deciding What to Do About Early Stage Prostate Cancer (Michigan Cancer Consortium) 25 p. booklet
5  -    A Revolutionary Approach To Prostate Cancer by Aubrey Pilgrim (lots of good information)
6  -    Seeds of Hope -A Physician's Personal Triumph Over Prostate Cancer by Dr. Michael A. Dorso.
7  -    What You Need To Know About Prostate Cancer (on-line booklet from the National Cancer Institute)
8  -    Active Surveillance (The Lancet Oncology, 2004; Article by Chris Parker - PDF)
9  -    The Median Isn't The Message (Stephen J.Gould+)
10-    Books recommended by Robert Young+ of Phoenix5

-- L- Print Magazines  1-3 are also 'on-line'; 4 & 5 paper only ---
1  -    Cancer Communication -PAACT (Lloyd Ney+) - (616) 453-1477; FREE!!
2  -    Insights, PDF format  -PCRI  - (310) 743-2110  - superb and FREE!!
3  -    USTOO Hotsheets (monthly, PDF format) (800) 808-7866; FREE!
4  -    Prostate Forum -(Charles Myers, MD, (804) 974-1303  -$56/year for 12 issues)
5  -    John Hopkins Prostate Bulletin ($149/year for 4 issues)

-- M- Web Magazines and Blogs ---
1  -   PSA Rising - Jaqueline Strax -- on the first page is Prostate Cancer Basics, a superb introduction for
         newly diagnosed patients
2  -   Prostate-Help - Don Cooley
3  -   PatientLinx- subscribe to 'Cancer-Prostate', and receive an annotated bibliography weekly by E-mail
4  -   Focus: Progress Report Newsletter- Prostate Cancer Foundation
5  -   Newspulse - Monthly Newsletter - Prostate Cancer Foundation (can be e-mailed)
6  -   Medpage Today - Prostate Cancer News
7  -   Aware - newsletter of the National Prostate Cancer Coalition
8a -  About.com - Prostate Cancer
8b -  Numerous Blogs listed by a private practice web site
9 -    The Palpable Prostate - superb, lots of information. Search bar in the Palpable Prostate:
         Prostate Cancer News at 1. Google, 2. UroToday and weekly at 3. Amedeo and 4. Cancer Updates.
         10-13 are rather technical:
10-   Urology Times - "The Leading News Source for Urologists"
11-   Prostateline.Com - AstraZeneca's site for health professionals-
12-   Uro Today -
 For Urologists by Urologists (the editors are urologists)
13-   Biomed Central - Publisher of BMC Urology and 185 other open access journals


-- N- Support Groups  and their  Newsletters ---
1
  -  
USTOO - organization of 400 prostate cancer support groups  -PCNG is a USToo chapter!
2  -  
Canadian Prostate Cancer Network - Internet Resource Centre
3   
An outstanding newsletter in Canada (Manitoba)
4  -  
Queensland (Australia) Prostate Cancer News
5  -  
Prostate Cancer Coalition of New Jersey - newsletters
6  -  
California Prostate Cancer Coalition (59 support groups)
-   
Washington State Prostate Cancer Coalition (Bellevue)
-  
NASPCC: National Alliance of State Prostate Cancer Coalitions
9  -   Phoenix, Arizona,  USTOO Chapter - Ralph Valle
10  
Texoma, Texas,  USTOO Chapter - newsletters

11-   Wichita, Kansas, USTOO Chapter -  nice web site

-- O- Tables, Nomograms, and Calculators ---
1  -  
Partin Tables (2001) - Brady Urological Institute
2  -  
Prediction Tools from MSKCC, including downloadable nomograms for Palm and Pocket PC PDAs
3  -  
Prostate Nomogram of the Memorial Sloan-Kettering Cancer Center (MSKCC,  NYC)
4  -  
Forecasting the Course of Disease -- calculator on-line (Dr. Crawford)
5  -  
Predicting Likelihood Of Cancer If A Prostate Biopsy Is Performed (USRF - Drs. Marks/Thompson)
6  -  
November 2005 issue of INSIGHTS (PCRI publication)
7  -  
Texas Prostate Center: PSADT calculator & post-RP recurrence nomograms

-- P- Drugs ---
1
  -  
Medline Plus Drug Information
1a-  
DailyMed, another NIH website, more info than on Medline Plus
2  -  
Rxlist - with extensive pharmacokinetics information
3  -  
Physician's Desk Reference Drug Information
4  -  
Drug Digest, excellent!
5  -  
Drugs.com
6  -  
Chemocare.com - information about drugs used in chemotherapy
7  -   
British info about chemo drugs
         web pharmacies:
8  -  
FamilyMeds - more drugs than most other sites
9   
Pharmacy Checker - comparison shopping, includes Canada (Casodex!)
10-  
Pillbot.com - comparison shopping, includes AARP and Costco prices (the lowest in the USA)
11-  
DestinationRx - comparison shopping, only USA