Catching up

First off, go check out Charming BB's really great Disability Blog Carnival. Go on. I'll wait. But be sure to come back here. And be sure to leave me a link to your favorite post this month, because I host right here next month. It will mark my first time ever as a blog carnival host. I don't have a theme I expect others to fit themselves into. I'll see what comes up from the submissions I get. Help me out here, and send me your best stuff!

Second off. Er. Um. To continue. Er, no, to switch topics. Yes, that's it. I went to Staple in Austin last weekend, and got a copy of Usagi Yojimbo, Book 1, "The Ronin," signed and with a little sketch by Stan Sakai. Oh, so cool! And many other neat people also were there, such as Rod Espinosa and Chris Allen, who have both done historically oriented comics for Antarctic Press. I bought a signed copy of Allen's Obama, the only Obama commemorative item I have spent money on. I also bought The Less Than Epic Adventures of TJ and Amal, which is a self-published book by E.K. Weaver. And I got a very nice sketch of Amal tossed in for the price! And also, I bought Phuni Comix, which is more of "Science and Religion", which I bought last year and enjoyed. It's probably a niche taste, but I find the silliness appealing.

And lastly, my right wrist separated Thursday night. Oh, it's fine-ish now, but I'd like to know, why is it that I can never find my bandages and splints when I need them? What compels me to put them away? Why aren't they laying out on my dresser along with my old teddy bear, single earrings, and crumpled receipts? I swear, I go through this every single time. Where can I put them that they won't be in the way when I don't need them, but also won't be impossible to find when some part of me has decided to storm off in a hail of bitter recriminations and tears? What do you do about things like this? Where do you put your repair kit stuff that it can be fetched with whatever limb you have working at the moment?

In which I finally make what is probably an obvious connection

The past several days have been absolutely miserable. There was a joint in my body that wasn't complaining, and quite loudly, too. And I was nauseous. I was inflamed. You'd think the nausea would have clued me in, but I am stubbornly dense. Anyway, pain. Of the beaten to a pulp by giants and then rolled over by heavy machinery that won't get off me sort. I only have Darvocet for pain relief, because this bad of pain this much all over isn't an everyday thing, for which I am thankful. And even really bad pain can be ignored to an extent if I can stay distracted. Being distracted, though, is impossible when one wants to sleep.

Monday night, I finally realized that my head was also hurting, that someone was coming along every few moments and wailing on the right side of my skull, sending my eye shooting out the socket. Well, it felt that way. And that is when it dawned on me that maybe I ought to take a Zomig. It worked marvellously well. I actually fell asleep within an hour and slept through the night.

So. Hmmm. Now I'm thinking that my crapped out neck maybe leads to the migraines, and the migraines magnify every other distress in my body. It also helps that the pressure front that was bearing down finally broke into actual storm. However, since I can't command the weather, I will instead follow up on this migraine-joint pain connection.

Death by a Thousand Paper Cuts!

OK, not death. And not a thousand. But still...oh, so very, very annoying!

My fingers go on these jags wherein, for a couple weeks every so often, it seems as if the cuticle around the nails tears at the slightest provocation. Since I handle paper as part of my job (oh, the perils of office work!), I can't avoid the chief cause of the injuries. The last couple of weeks I've been furiously painting Liquid Bandage on one finger, then another, and then recovering the wounds an hour later when the stuff peels off. Anybody know a better product? I have considered Super Glue, but it is pretty much a one-time use product for me, since I can never get the lid off more than once. If it gets too bad, I'll wear latex gloves at work. It looks weirdly creepy, though, so I like to avoid that.

The Blue Lantern

Obama, I understand, is a big ol' geek. That's why I'm sure he'd love this rendition of himself as Phil Jimenez's Blue Lantern.

Five-oh

The great thing about naming one's blog in such a way as to disabuse readers of any notion of timely updating is that no one worries when I haven't posted in over a week. This state of affairs might have gone on for another week, but my fiftieth birthday is Saturday (today), which is a big enough deal that maybe some of you would be put off if I didn't tell you.

Not that I'm doing all that much interesting for my birthday. I'm taking a friend to the airport, meeting up with my daughter, and going to a comic book shop where I will also meet up with a friend who has never bought comic books but thinks it might be cool. And we will eat. I think I will try a Greek place my daughter goes to with her best friend.  Then we will go to Goodwill to rid ourselves of things we can no longer wear. Then we will go to Half-Price Books to rid ourselves of books we have done with and to buy new used ones. And then I will be exhausted. Gad, what am I doing? That's a lot of standing and shopping for one day. My knees are already preparing their protest, I can tell. They are busy with poster paints, picket signs, and giant puppets. But I can assure them, my plans include plenty of sitting down time. And I have a cane that unfolds into a seat, which works well for browsing for comics and books.

Which reminds me.... I went clothes shopping last weekend, since I've dropped too many sizes to keep on wearing my old stuff. While I was at the mall, I spotted another woman, about my age, making her way into the parking lot with a look on her face and a gait that I recognized instantly. She was in agony, every step sending waves of pain from her feet up into her brain, and all she could think of was to keep moving, to get to her car, to sit down. She nearly stumbled into traffic but showed no sign on her face that she saw anything beyond her own pain. And she was wearing what passes for comfortable shoes, so I know this wasn't the first time. Sister, I feel your pain. Where's your cane? It needs to be your next purchase. 

Oh, other excitement today. I mean, Friday, not today which is Saturday. (No, I haven't gone to sleep yet. Yes, it is 3 am. Why do you ask?)  I had my first full fledged asthma attack in quite some time. Oh, yeah, I always have asthma, and generally have some symptoms. But except during ragweed and pollen season, when I'm prepared, I haven't had any serious problems in several years. Damn, I had forgotten just how much I hate it. Guess I'll sleep sitting up tonight. Which is today. Er. Man, my sleep schedule is just a mess.

So, why am I going to the comic book store for my birthday? Oh, you tell me what else I should do when I am severely single and my birthday falls on a day dedicated to romance, and every freaking event in the city is geared toward couples? Dammit, I'm going to commune with my kind. It's been over six months since I last had the time to go, so surely there's something waiting for me. I wish Dylan Meconis's Bite Me was out already, but I guess I'll just have to use its coming out later as an excuse to make another foray sooner than six months. At least, it better not take 6 months to finish its journey from web comic to bound graphic novel. I wants it now!

Speaking of vampires. Sort of. Last month's most interesting geeky fun was watching Kamen Rider Kiva, the touching story of a young man, abandoned by his vampire mother, raised by a mechanical bat and a possessed violin, who lives in a house with the best bathtub in all Japan and the worst locks. Seriously, if I'm taking a bath and people keep showing up and climbing in with me, I'm seeing the landlord about my deadbolt. But I really liked the character development of the story, and wish it had gone on longer so more could have been done. So far, the current Kamen Rider isn't as promising. The worst photographer in 10 worlds has to fight monsters on 9 worlds in order to keep the 10 worlds from collapsing into each other. Ummm. It's being called "Crisis on Infinite KR Worlds" by toku followers, and since versus-type stories don't appeal to me, this one is rather leaving me cold. However, Donut, I mean, Decade, does have a "light red" uniform, so I am at least amused. Oh, and Heroes is back. The entire issue of Daphne's CP seems to have been dropped. Why is it that a TV character only has a disability when it is convenient? I'd like TV shows to reflect the reality that disability is everyday, not just as a plot device. Thus, Kiva failed when Nago's eyesight came back miraculously, but succeeded as Wataru, even though he got better at coping, continued to grapple with his rather substantial psychiatric issues all the way through the series. Heroes, can't you take disability more seriously than a kids' show?

Well, now, this post has been all over the place, hasn't it? Happy Valentine's Day, all you couples and triples and whatnot out there. And the rest of you, this is my birthday, so celebrate it with me. Surely there is a comic book calling your name.

Truly wonderful!

I read in Media Dis & Dat today of a new park being built in San Antonio, TX. Morgan's Wonderland, named in honor of his daughter, will be what is probably the first-in-the-world public park with dedicated primary use for visitors with disabilities.  Philanthropist/developer Gordon Hartman has even managed to bring the city, county, and local school district in on the project, and is making sure to keep records of the process so that others will be able to duplicate his efforts. Non-disabled children and adults will also be using the facilities, but at this park, disability is not an after-thought or add-on. How neat! 

Ring splints

I don't know if the use of ring splints in EDS is widespread enough to be called universal, but it is pretty darn common. I've used both Silver Ring Splints (SRS) and Oval 8s, both of which have plusses and minuses. I first got SRS, oh, six or seven years ago, though I needed them earlier. Completely losing the ability to maintain a grip was a motivating factor in getting them. I got eight fingers splinted at the time (three fingers on each hand, plus thumbs), leaving out my pinkies in order to reduce my out of pocket expenses. Since then, I've managed to lose splints, break splints, and replace some splints. Pinkies are still waiting for the love.

Perhaps you'd like to see pictures? OK, here's pictures!

This is a front view of my hands with silver ring splints, including thumb splints. I have the thumb splints tied on with elastic band because (1) I find having anything more substantial right at the base of my palm drives me nuts and (2) I tend to snag bracelets. I used to have a splint for my right middle finger, but it is broken.

Here you can plainly see that I don't have my pinkies splinted. You also get to see my lovely saggy baggy skin. It's always been that way, sort of flopped on top of bones and veins. My hands naturally curl up--tighter than this--and the splints help keep me from contracting them quite so much. 

Both hands, with fingers forced straight. Notice that the unsplinted fingers are taking creative paths. You can also see that my thumbs do their best, even splinted, to disappear into my palm. The splints on them guide them into the correct place, but don't put a lot of pressure on them. In fact, over time, all of the splints become deformed from my fingers' tendency to veer off. This is why Carapace prefers 3 Point Products Oval 8 splints. Also, you can buy Oval 8s directly, if you know your knuckle size, but SRS need to be sized by professionals. Because I have so much extra skin on my fingers, and the joints were quite swollen, the hand therapist had quite a challenge getting the right size, so if you are like me, don't expect that you will get the right size the first time with SRS.



Finally, here is a palm-side view of my left hand. You can see that I have a mixture of extra-strength and regular-strength splints.  I would suggest to anyone to get the stronger ones because  of the tendency of the splints to deform after a while.

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Please take a moment to speak up for Minna. Her life depends on all of us.