Site Links
Reference
About this site
Related Page
States
Survivors—follow up clinics
The following criteria are used to add an institution to the list:
- Has a dedicated time and place for survivor clinic
- Meets at least twice a month
- Staffed by a doctor with experience in the late effects after treatment for childhood cancer
- Has a nurse coordinator
- Provides state-of-the-art screening for individual’s risks of late effects
- Provides referrals to appropriate specialists
- Provides wellness education
If you know of a clinic that should be included on this list, please e-mail Patty.
The date the information was last follows every entry below.
Canada
AfterCare Clinics
The Pediatric Oncology Group of Ontario's survivors clinics.
Long-term Follow-up Clinic
Alberta Children's Hospital
Hematology/Oncology/Transplant Program
2888 Shaganappi Trail NW
Calgary, Alberta T3B 6A8
Canada
Phone: 1 (403) 955-7256
Fax: 1 (403) 955-2647
Nurse Clinician: Terri-Lee Shykula
Nurse Coordinators: Lisa Niotis, Greg Stewart
Medical team: Kathy Reynolds MD, D.H. Ross Truscott MD, Lucie Lafay-Cousins MD
The clinic meets every Thursday. Sees patients once they are 2 years off treatment and visit requirements are not greater than every 4 months. Patients are followed until they are 10 years off therapy or 20 years of age, whichever comes last. Our multidisciplinary team consists of a pediatrician, family physician, neuro-oncologist, neuro-psychologist , social worker, endocrine consultant and 3 registered nurses. We do accept patients treated in other centres, a transfer from the previous treatment centre is required.
(11/2008)
Alabama
Taking on Life After Cancer Clinic
Children's Hospital of Alabama
1600 7th Avenue South
ACC 512
Birmingham, Alabama 35233
(205) 939-9285
Nurse Clinician: Pat Cotton, CRNP
Supervising Physician: Kimberly F. Whelan, MD
Sees patients at least two years off treatment. Meets every Friday.
(7/2009)
Arizona
Phoenix Childrens Hospital
Long Term Follow-up Clinic
1919 E. Thomas Road
Phoenix, Arizona 85016
(602) 546-0920
Nurse Coordinators: Britt Olson RN, MSN, CPNP and Michelle Martinez, RN
Medical Director: Galit Rosen, MD
The clinic meets the first 3 Thursdays each month. Sees patients at least 2 years off therapy or 5 years from diagnosis whichever comes first. Sees all ages, including adults. Provides referrals.
(7/2009)
California
Childrens Hospital Los Angeles
LIFE Program (Long-term Information, Follow-up and Evaluation)
4650 Sunset Blvd. #54
Los Angeles CA 90027
Nurse practitioners: Maki Okada, RN, MS, CPNP, CPON; Kasey Rangan, RN, MSN, CPNP; and Yael Rosenthal, RN, MSN, CPNP
Medical Director: David R. Freyer, DO, MS
For further information about the program or to schedule an appointment, please contact our office at 323-361-8953 or via email at LIFE@chla.usc.edu
Web site: www.life4survivors.org
Sees both child and adult survivors; provides referrals for adults.
(7/09)
City of Hope National Medical Center
Childhood Cancer Survivor Program
Center for Cancer Survivorship
Department of Population Sciences
1500 E. Duarte Rd. DPS 173
Duarte, CA 91010
Department Chair: Smita Bhatia, MD, MPH,
Medical Director: Saro Armenian DO, MPH
Clinical Director: Wendy Landier, RN, MSN, CPNP, CPON
Nurse Practitioner: Karla Wilson, RN, MSN, FNP-C, CPON
Registered Dietician: Dhvani Bhatt RD
Psychologist: Randi McAllister PhD
Clinical Research Assistants: Claudia Herrera, CRA and Meghan Zomorodi, BA
The clinic meets on Wednesday mornings and Friday afternoons. For further information or to schedule an appointment, call Claudia Herrera at: 626-471-9220 or email: survivorship@coh.org.
Patients must have been diagnosed with cancer at 21 years of age or younger and they must be 5 years from diagnosis and 2 years off treatment. There is no upper age limit. Screening evaluations are based on the Children’s Oncology Group Long-term Follow-Up Guidelines.
(9/2009)
Children's Hospital of Orange County
455 S. Main St.
Orange, CA 92868
Appt: (714) 532-8636
Coordinator: Janet Hager RN BSN
Phone: (714) 289-4181
Medical Director: Lilibeth Torno MD
Our Long Term Follow up clinic meets every Thursday afternoon (except the 5th Thursday of the month). We see patients that are 2 years or more off therapy, until they reach age 21. It is a multidiciplinary clinic with oncology, endocrinology, cardiology and psychology. Patients see specialists as needed.
(8/2009)
UCLA-LIVESTRONG Survivorship Center of Excellence
VITA Clinic for Adult Survivors of Pediatric Cancers
650 Charles Young Drive South, Room A2-125 CHS
Los Angeles, Ca 90095-6900
Program Coordinator: Erin Hahn, MPH
Phone: 310-825-9781
Email: ehahn@mednet.ucla.edu
Website: www.vita.mednet.ucla.edu/survivorshipcenter
Medical Director: Patricia Ganz, MD
This clinic is for patients treated for pediatric/adolescent cancer who are now over the age of 18. We can see patients that were treated anywhere; it is not only for UCLA patients. This clinic is on Fridays.
(8/2009)
UCLA Pediatric Long-Term Follow-Up Clinic
Program coordinator: La Vette Bowles, NP
Phone: (310) 825-6708
Medical Director: Jacqueline Casillas, MD
Website: www.cancer.ucla.edu/Index.aspx?page=222
This clinic is for patients treated for pediatric/adolescent cancers who have been off treatment for 2 years and are currently under the age of 18. This clinic is on Thursday afternoons.
(8/2009)
Colorado
Denver Children's Hospital
HOPE Clinic
1056 East 19th Ave, B115
Denver, CO 80218
Coordinator: Genevieve Sylvain
(303) 864-5441
Medical Director: Brian Geffe, MD
(12/2006)
Connecticut
HERO'S (Health, Education, and Research Outcomes for Survivors) Clinic
Yale Cancer Center
New Haven, CT 06520
(203) 785-4640
Nurse Clinician: Tonetta Christie
Supervising Physician: Nina Kadan-Lottick, MD
Sees patients of any age previously diagnosed with childhood cancer (at an age <21 years) who are at least 3 years since diagnosis. Meets 1st and 3rd Tuesday of every month.
(8/2009)
Delaware
Oncology Survivorship Program
Nemours duPont Hospital for Children
1600 Rockland Rd
Wilmington, DE 19803
(302) 651-6765
Survivorship Nurse Practioner: Joanne Quillen, RN, MSN, PNP-BC
Medical Director: Rita Meek, MD
Dedicated clinic meets every Thursday. Joanne Quillen also sees patients
on Tuesdays and Wednesdays, and a psychologist sees patients on
Thursdays.
(5/2010)
Florida
Children's Hospital of Southwest Florida
PACE (Pediatric After Cancer Experience Clinic)
Pediatric Hematology-Oncology Program
Children's Hospital of Southwest Florida
9981 S. Healthpark Drive Suite 156
Ft. Myers, FL 33908
Pam K. Wojciki, MS, RN-CS, ARNP, CPON
Office phone (239) 343-5333
pam.wojciki@leememorial.org
Meets weekly; patients seen by the clinic coordinator with 2 pediatric oncologists on site.
(8/2009)
Georgia
Children's Healthcare of Atlanta
AFLAC Cancer Survivor Program
5455 Meridian Mark Suite 400
Atlanta, GA 30342
(404) 785-1717
Program Data Coordinator: Melissa Hamilton (contact Melissa to schedule an appointment)
Medical Director: Lillian Meacham, MD
Pediatric oncologist: Karen Wasilewski-Masker, MD
Clinic is held every Tuesday; treats survivors up to age 20.
(5/2010)
Illinois
Children's Memorial Hospital
STAR Clinic
2300 Children's Plaza
Chicago, IL 60614
For an appointment, call (773) 880-6316
Coordinator: Tricia Salicete
Nurse Practicioners: Barbara Lockert APN and Karina Danner-Kopik, APN
Program Director: Kimberley Dilley, MD
Meets every Wednesday in Chicago and the 2nd Tuesday of every month in Arlington Heights; treats survivors up to age 23.
(5/2010)
Children's Memorial Hospital/Northwestern Memorial Hospital
Northwestern Medical Faculty Foundation
Star Program for Young Adult Survivors
Survivors Taking Action & Responsibility Comprehensive Care for Survivors of Pediatric Malignancies
675 N. St Clair 18-200
Chicago, IL 60611
Medical Director: Aarati Didwania, MD
Clinical Nurse Specialist: Karen Kinahan, MS, RN
(312) 695-4979
kkinahan@nmff.org
Clinic meets Tuesday afternoons twice a month.
Treats survivors over 18 years old who are 5 years post diagnosis.
(5/2010)
University of Chicago
Center for Survivors of Childhood Malignancies
Program Director: Tara Henderson, MD, MPH
Nurse Practitioner: Vicki Schulz-Gontarz, RN
Phone: (773) 702-6808
Meets weekly (every Tuesday); treats children, teens, and adults.
(5/2010)
Advocate Hope Children's Hospital
Pediatric Oncology Survivorship in Transition (POST) Clinic
Keyser Family Pediatric Cancer Center
Advocate Hope Children's Hospital
4440 W. 95th St
Oak Lawn, IL 60453
(708) 684-4042
Medical Director: Sharad N. Salvi, M.D.
Nurse Coordinator: Linda Rivard, R.N.
Meets on Tuesdays and Thursdays (but new patients are seen only on Tuesdays). Sees patients 2–3 years off treatment and provides referrals to any subspecialities. Cares for children, adolescents, and adults.
(5/2010)
Indiana
Riley Hospital for Children
Indiana University School of Medicine
Childhood Cancer Survivor Program
Riley 4340
702 Barnhill Drive
Indianapolis, IN 46202
Coordinator: Ann Haddix, RN, CPNP
Medical Director: Terry Vik, MD
Meets the first and fourth Wednesda of the month (more during the summer); sees children, teens, and will refer adults.
Clinic Appointments (317) 278-0199 or ahaddix@iupiu.edu
(5/2010)
Maryland
Johns Hopkins Kimmel Cancer Center Long Term Follow-Up Clinic
The Michael J. Garil Leukemia Survivors Program for Children, Adolescents and Adults
Baltimore MD 21231
410-955-8751 (Under 21 years old); 410-955-8893 (Over 21 years old)
Coordinator: Kathy Ruble, RN
Physician Contacts: Robert J. Arceci, M.D., Ph.D. and Judith Karp, M.D.
(1/2007)
Massachusetts
Dana-Farber Cancer Institute
David B. Perini, Jr. Quality of Life Clinic for Childhood Cancer Survivors
44 Binney Street
Boston, MA 02115
(617) 632-5124
Coordinator: Kren Giltin
Program Director: Lisa Diller, MD
Website: David B. Perini Quality of Life Clinic
Meets Tuesdays and Thursdays; sees children and adults.
(5/2010)
Dana-Farber Cancer Institute
Pediatric Neuro-Oncology Outcomes Clinic
44 Binney St, SW 331
Boston, MA 02115
(617) 632-2680
Coordinators: Maura Ivems and Rose Joseph
Program Director: Christopher Turner MD
Website: Pediatric Neuro-Oncology Outcomes Clinic
Meets Thursdays; Sees children and adult survivors of pediatric brain and spinal cord tumors.
(5/2010)
Michigan
University of Michigan
Long-Term Follow-Up Clinic
Department of Pediatric Hematology/Oncology
1500 East Medical Center Dr.
Ann Arbor MI 48109
(734) 936-9814
Coordinator: Marcia Leonard, RN, PNP
Medical Director: Valerie Castle, MD
(12/2006)
DeVos Children’s Hospital
The After-Care and Transition (ACT) Program
Division of Pediatric Hematology/Oncology and Blood and Bone Marrow Transplantation
330 Barclay NE Suite 203
Grand Rapids, MI 49503
(616) 391-2238
Coordinators: Colleen Gardner and Michele Van Soelen
Medical Director: David Freyer, MD
The ACT clinic meets on two Wednesdays a month; in addition, they meet once a month for BMT survivors and once a month for brain tumor survivors. It serves both children and adult survivors of childhood cancer.
(12/2006)
Minnesota
Long Term Follow-Up Clinic, University of Minnesota Hospital
Harvard St. and East River Rd.
Minneapolis, Minnesota 55455
Coordinator: Nancy Youngren
To speak with Nancy Youngren please call (612) 626-2140
To schedule an appointment: (612) 625-5411
Joseph Neglia, MD, and Daniel Mulrooney, MD
Scott Baker, transplant follow-up
Clinic meets every Friday. Sees children and adults.
(12/2006)
Children's Hosptials and Clinics of Minnesota
Minneapolis: Children's Hosptials and Clinics of Minnesota
2525 Chicago Ave
Mailstop 32-4150
Minneapolis, MN 55404
Nurse coordinator: Vicki Schaefers, RN, CNP-Peds
Medical director: Dr. Joanna Perkins
Appointments: (612)813-5940
Contact Vicki: (612)813-6543
Patients seen on Tuesdays. We see children and young adults at least 3 years off therapy. We see survivors up to the age of 24 and then transition them to primary care providers, but they continue to act as consultants on an as-needed basis.
St. Paul: Children's Hospitals and Clinics of Minnesota
347 N. Smith Ave
Mailstop 70-301
St. Paul MN 55102
Nurse coordinator: Vicki Schaefers, RN, CNP-Peds
Medical director: Dr. Joanna Perkins
Appointments: (651)220-6732
Contact Vicki: (612)813-6543
Patients seen on Mondays. We see children and young adults at least 3 years off therapy. We see survivors up to the age of 24 and then transition them to primary care providers, but they continue to act as consultants on an as-needed basis.
(5/2007)
Missouri
St. Louis Children's Hospital/Washington University School of Medicine
Late Effects Clinic
One Children's Place
St. Louis, MO 63110
Nurse coordinator: Jeanne Harvey
Medical Director: Robert Hayashi, MD
For appointment call (314) 454-6048 or (314) 454-6018.
Meets twice a month; sees children and young adults who are at least 2 years off therapy.
(12/2006)
New Jersey
Hackensack University Medical Center
Tomorrow’s Children’s Institution
Cure and Beyond
385 Prospect Ave
Hackensack NJ 07601
(201) 487-8987
Program Director: Michael B. Harris, MD
Coordinator: Hope Castoria, RN
Beverly Ryan MD
Sees both child and adult survivors of pediatric cancer.
(12/2006)
New York
Memorial Sloan Kettering Cancer Center
Long-Term Follow-Up Clinic
Department of Pediatric Oncology
1275 York Ave
New York, NY 10021
Divided into two clinics:
Charles Sklar MD
Nurse practitioners: Elaine Pottenger,CPNP and Debbie Diotallevi, CPNP
(212) 639-8138
See pediatric patients up to age 18.
Kevin Oeffinger, MD
Nurse practitioners: Roseann Tucci, ANP and Beth Whittam, CFNP
(212) 639-8469
See adult survivors of childhood cancer.
Website: MSKCC Long-Term Follow-Up Program
(3/2008)
SUNY Upstate Medical University
KNOT: Kids Now Off Therapy Clinic
750 E Adams St.
Syracuse NY 13210
(315) 464-7229
Coordinator: Susan Shaw, RN, MS, PNP
Program Driector: Irene Cherrick, MD
(12/2006)
Center for Survivor Wellness
Herbert Irving Child and Adolescent Oncology Center
Columbia University Medical Center
161 Fort Washington Avenue, Garden Suite
New York, NY 10032
(212) 305-2354
Program Director: Jennifer Levine, MD, CSW
Nurse Practitioner: JoAnn Benn, FNP
Clinical Coordinator: Solimar Curumi
We see patients on Wednesdays in the Garden Suites and provide comprehensive medical care, review of treatment summary and followup recommendations and a comprehensive nutrition, exercise, and psychosocial evaluation.
(12/2006)
Roswell Park Cancer center
Long Term Follow Up Project
Elm & Carlton
Buffalo NY 14263
(716) 845-8011
Nurse Coordinator: Theresa Carbone MS RN CPNP
Medical Director: Daniel Green MD
Meets on Tuesdays. Sees children, teens, and adults; provides referrals.
(1/2007)
Generation of Survivors
The Pat Lyons Long Term Follow-up Program
The Cancer Center for Kids at Winthrop University Hospital
200 Old Country Road Suite 440
Mineola, NY 11501
(516) 663-9400 for information and to make appointments.
Medical Director: Mark Weinblatt, MD
Nurse Practitioner: Sharon Coritsidis, RN MSN CPON CPNP
Nurse Coordinator: Cathy Shimmel RN MA CPON
The clinic meets bimonthly on Thursday afternoons and sees survivors of pediatric cancers of any age who are at least two years off treatment; provides referrals.
(5/2007)
North Carolina
Duke University Medical Center
Pediatric Hem/Onc
Erwin Road
Durham, NC 27710 USA
919-684-3401 (appts for children and teens)
(919) 684-8964 (appts for adults)
Philip Rosoff MD (children and teens)
Carlos DeCastro (adults)
Clinic meets Thursdays once a month for children and teens (up to age 18); adults are seen every third Thursday.
(12/2006)
Ohio
Children’s Hospital Medical Center
ATP Five-Plus Clinic
333 Burnette Ave
Cinninnati, OH 45229
(513) 636-3512
Coordinator: Judy Correll, RN, CPNP
Karen Burns, MD; Raj Nagarajan, MD
Website: description of and contacts for the ATP Five-Plus Clinic
Sees children, teens, and adult survivors; will refer.
(12/2006)
Akron Children's Hospital
START-UP clinic
"Staying Together After Recovery and Tapping Unlimited Potential."
One Perkins Square
Akron, OH 44308
(330) 543-8580
Clinic Coordinator: Pam Jones, RN
Program Director: Sarah Friebert, MD
Any childhood cancer survivor who has been off treatment for two years is eligible to participate in the START-UP program, regardless of age. The clinic usually meets only once a month but does plan additional clinics when students are off from school.
(12/2006)
The Center for Survivors of Childhood Cancer
Rainbow Babies & Children's Hospital
11100 Euclid Avenue
Cleveland, OH 44106
(216) 844-3070
Program Director: Lisa Vitkus, MPH
Chad Jacobsen, MD
Web site
The clinic is held 2 times per month and we see children, teens and adult survivors of childhood cancer. All patients receive a summary of their cancer treatment, medical and psychosocial evaluation, screening and education about late effects, and referral and ancillary testing as needed.
(12/2006)
Nationwide Children's Hospital
The Frederick B. Ruymann, MD Survivorship Clinic
700 Children's Drive
Columbus, OH 43205
(614) 722-3576
Medical Director: Amanda Termuhlen, MD
Program Coordinator: Kathy Johnston, APRN, BC, PNP
Nurse Clinician: Lory Guthrie, RN, BSN, CPON
We see children, teen and adult survivors of pediatric cancers. We see patients on the 1st and 3rd Tuesday and the 2nd and 4th Wednesday afternoons each month in our comprehensive clinic. This comprehensive clinic provides treatment summary review, physical examination, patient/family education and evaluations by psychology, social work, education, dentistry and nutrition.
(7/2010)
Pennsylvania
Children’s Hospital of Philadelphia
Long-Term Follow Up Clinic
34th & Civic Center Blvd
Philadelphia, PA 19401
(215) 590-3025
Coordinator: Wendy Hobbie
Nurses: Sue Ogle CPNP and Claire Carlson, RN, BSN, Maureen Reilly, RN, BSN
Physicians: Jill Ginsberg, MD, Anna T. Meadows, MD
Sees both child and adult survivors.
(12/2006)
Lance Armstrong Foundation Living Well After Cancer Program
The University of Pennsylvania Cancer Center
Abramson Cancer Center
University of Pennsylvania
Penn Tower Hotel #1428
3400 Spruce Street
Philadelphia, PA 19104
(215) 615-3371
Program Director: Linda A. Jacobs, PhD, RN
Medical Director: Anna T. Meadows, MD
Adult cancer survivorship program and a transition program for adult survivors of childhood cancers.
(12/2006)
Tennessee
St. Jude After Completion of Therapy (ACT) Clinic
St. Jude Children's Research Hospital
262 Danny Thomas Place
Memphis, TN 38105
(800) 775-2167
Clinic Director: Dr. Melissa M. Hudson
Staff: The clinic is staffed by 5 pediatric oncologists, 2 primary care providers (a family practitioner and internist), 6 nurse practitioners, and 2 social workers.
Clilnic Hours: The clinic currently meets daily.
The aim of our clinic and our services: Our aim is to help St. Jude alumni stay healthy after treatment ends through education about cancer-related health risks and healthy living and by health screenings. We routinely provide survivors with cancer treatment summaries and personal health records to share with their local doctors. We work with survivors to help them find local resources to stay healthy after cancer. When needed, we will write to insurance companies to explain why certain tests may be needed, based on the former patient’s cancer history.
Who is eligible: The clinic limits services to patients who received treatment at St. Jude. Patients treated at other centers who move to the Memphis area are also eligible for services. St. Jude patients are eligible for transfer into the ACT Clinic when they are 5 years from diagnosis and their disease has been in remission for at least 2 years after completion of therapy. Patients are seen annually by the ACT Clinic staff until they are 10 years from diagnosis and at least 18 years of age. Most adult survivors then graduate as alumnus of the clinic. They are monitored annually through a mail questionnaire sent by the St. Jude Cancer Registry. St. Jude alumni survivors are now eligible to return for health evaluations as part of the St. Jude Lifetime Cohort study. Please contact the St. Jude Lifetime study coordinator by e-mail (shelia.shope@stjude.org) or phone (901-595-3482) for more details.
(5/2009)
Childhood Cancer Survivorship Program
Vanderbilt Children's Hospital
Coordinator: Kristin Campbell, MSN, CPNP
Medical Director: Jill Simmons, MD
2220 Pierce Avenue, 397 PRB
Nashville, TN 37232-6310
Physicians: Pinki Prasad, MD and Travis Bowels, MD
(615) 936-8310
website
The clinic meets on the second and fourth Fridays of the month. Sees childhood cancer survivors of any age. Survivors are defined as anyone off therapy for 2 or more years, or more than 5 years from diagnosis.
(12/2007)
Texas
Children's Medical Center of Dallas
After the Cancer Experience (ACE)
1935 Motor Street
Dallas TX 75235-7794
(214) 456-2948
Coordinator: Debra Eshelman, RN, CPNP and Cindy Cochran, RN, CPNP
Dan Bowers, MD (sees children and teens)
Hong Xiao, MD and Alex King, MD (see adults)
Sees survivors 5 days a week.
(12/06)
MD Anderson Cancer Center
Long Term Survivor Clinic
1515 Holcombe, Box 87
Houston Tx 77030
(713) 792-5410
Coordinator: Nita Burrer RN, ANP, CNS
Medical Director: Alan Fields, MD
Meets every Monday and Thursday; sees children, teens, and adult survivors of childhood cancer.
(1/2007)
Texas Children's Hospital
Late Effects Clinic
Hematology/Oncology
6621 Fannin St.
CC-1510.21
Houston Tx 77030
(832) 822-4727
Coordinator: Gaye Hamor, MSHA
Medical Director: ZoAnn Dreyer, MD
Clinic meets on Wednesdays and Fridays.
(12/2006)
Cook Children's Medical Center
Life After Cancer Program at the Hematology & Oncology Center
901 Seventh Avenue, Suite 220
Fort Worth, Texas 76104
(817) 810-2125
Coordinator: Lisa Bashore MS RN CPNP
Program Director: Jeffrey C. Murray, M.D.
Treats survivors up to age 30 and will refer adults. Clinic days vary based on need. Typically every Monday and Thursday.
The Lance Armstrong Foundation and Cook Children's Medical Center in Fort Worth are partners in the Life After Cancer program.
(8/2007)
Childhood Cancer Survivors Clinic
Children's Cancer and Blood Disorders Center
Christus Santa Rosa Children's Hospital
333 N Santa Rosa St.
San Antonio, TX 78207
(210) 704 2187
Nurse Coordinator: Dina Paz
Medical Director: Shafqat Shah, MD
Clinic is held on Tuesdays.
(1/2007)
LIVESTRONG Survivorship Center
LIVESTRONG Survivorship Center
Dell Children's Medical Center of Central Texas
1301 Barbara Jordan Blvd, Ste. 402
Austin, TX. 78723
(512) 628-1910
Website
Nurse Practitioner: Christina Allegretti, RN, CPNP, CPON
Medical Director: Virginia Harrod, M.D.
Clinic times are patients Tuesdays, Wednesdays, and Thursdays. Sees children/teens/young adults who are at least 2 years off of treatment for a childhood cancer. In one comprehensive visit they provide a concise treatment summary, education on potential late effects unique to each patient, a psychosocial assessment completed by a licensed clinical social worker, nutrition consult from a registered dietician, referrals to neuro-psych testing by a certified child life specialist, assistance with insurance or financial concerns, and finally - support groups specifically created for survivors (and parents and siblings).
(7/2009)
Washington
Fred Hutchinson Cancer Research Center Survivorship Program, A member of the LIVESTRONG Survivorship Center of Excellence Network
1100 Fairview Ave N Mailstop LF-268
Seattle WA 98109
1-866-543-4272
survivor@fhcrc.org
Director: Scott Baker, MD
Coordinator: Emily Jo Rajotte, MPH
Nurse Practitioners: Karen Wilkinson ARNP, Polly Lysen-Halpern ARNP, Caryn Young, ARNP
www.fhcrc.org/survivorship
Fred Hutchinson Cancer Research Center's Survivorship Program provides clinical care, patient education and research opportunities to patients who have survived cancer and are not in active cancer treatment or are in long-term therapy to prevent recurrence. Patients primarily see NPs.
(5/2010)
Washington, D.C.
Long Term Follow-Up Clinic
Children's Center for Cancer and Blood Disorders
Children's National Medical Center
111 Michigan Ave., NW
4th floor, East Wing
Washington, DC 20010
Appts: (202) 476-2140 or Children's Hospital Appt.
Medical Director: Dr. Gregory H. Reaman, 202-476-7177
Nurse Coordinator: Holly DeLuca, RN, MSN, PNP, 202-476-3568
Clinic meets every Monday and sees all ages of survivors.
(7/2009)
Wisconsin
University of Wisconsin Hospital and Clinics
Caring for Life Clinic
600 Highland Ave.
Madison, WI 53792
(608) 263-6200
Coordinator: Peggy Possin
Medical Director: Diane Puccetti, MD
Clinic meets twice a month and sees survivors of all ages.
(5/2010)
Children's Hospital of Wisconsin
Next Steps Clinic
9000 W. Wisconsin Ave
Milwaukee, WI 53226
(414) 266-2774
Coordinator: Louise Leuthner
Medical Director: Michael Kelly, MD
Meets on the 2nd and 4th Wednesday of the month; treats children, adolescents, and young adults. Patients must be 2 years off treatment or 5 years since diagnosis.
(5/2010)
General Disclaimer
These pages are intended for informational purposes only and are not intended to render medical advice. The information provided on Ped Onc Resource Center should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you suspect your child has a health problem, you should consult your health care provider.