The Massachusetts CFIDS/ME & FM Association, a 501(c)(3) founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) and FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these often severely-disabling physical illnesses. We provide supportive services for patients and their families and advocate for more effective treatment and research.
A Conversation with Erica Verrillo, author of Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition
Erica Verrillo, author of the acclaimed book, Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition, will be the featured speaker at an Association event on May 18, 2013, in Sturbridge, MA. The event is free and open to the public.
The book includes in-depth discussion of all CFS symptoms with cross-referencing to appropriate treatments; the latest research into the causes and mechanisms of the illness; doctors' protocols; coping techniques; and special sections for managing chemical sensitivities, dietary restrictions and the special needs of children. Designed for the electronic age, the book features links and contact information for doctors and clinics, CFS organizations, research articles, and more.
Please join us to hear how Erica Verrillo wrote this incredible resource and what she has learned from 20 years researching treatments for CFS. Ms. Verrillo will also share her thoughts about what we have gained from the enormous resources offered by the Internet, and what we have lost since the 1990’s as well.
Learn more and register now.
Harvard Researcher and Sleep Expert, Dr. Jo Solet, presented "The Science of Sleep" at Spring 2013 Lecture on April 6th
A video of the lecture is being prepared. Watch the Newsletter for the announcement.
Help Raise Funds for ME/CFS Research
Did you know?
- Federal funding for this illness is about $6 per patient per year.
- We can band together to increase funding. Small amounts add up and make a difference. Could you contribute $15 to help fund research on YOUR behalf?
- Successful pilot studies can lead to major funding from other sources. What a way to leverage our donation!
- Activists for breast cancer, Alzheimers, and autism have been successful in raising money and awareness – we can be too!
Our Association has launched a campaign to raise funds for research. We will add everyone’s contributions together, and send the pooled funds to one of the three research foundations which were selected by the Board – after making your donation of any amount, you can vote to help choose which one will receive our collective contribution!
The top vote-getter will receive our pooled contributions on June 30, 2013. All money contributed in this campaign will be sent to the selected foundation to directly support ME/CFS research projects.
Learn more here, and read about the research foundations the Board has selected for your consideration.
New CME course: A Case-Based Approach to Chronic Fatigue Syndrome
This 30-minute online course, featuring clinicians Lisa W. Corbin, MD; Anthony L. Komaroff, MD; Benjamin H. Natelson, MD; and Peter C. Rowe, MD, was published on April 19, 2013 and is available for CME/CE credit until April 19, 2014, and also available to the public. Free registration on the Medscape website is required in order to view this course.
Patients with Pets This article explains how household pets or companion animals can boost a person's physical and emotional health—and there's research to prove it.
Significant concerns surround Somatic Symptom Disorder (SSD), a new psychiatric category in DSM-5.
The American Psychiatric Association (APA) has rushed its fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM) to their publishers. The Manual provides diagnostic guidelines for the classification and coding of mental disorders and is widely utilized by medical practices, hospitals and insurance companies. The fifth edition, DSM-5, includes a new psychiatric category, Somatic Symptom Disorder (SSD), that is flawed and dangerous. More details in DSM-5 Makes Way for Misdiagnosis of Physical Illness as Mental Disorders.
Videos of Dr. Byron Hyde's Fall 2012 lecture are posted
On Saturday, October 27, 2012 Byron Hyde, M.D., Founder and Director of the Nightingale Research Foundation (www.nightingale.ca), Ottawa, Canada, was the featured speaker at the fall lecture co-sponsored by Massachusetts CFIDS/ME & FM Association and the Massachusetts Department of Public Health. Dr. Hyde is recognized as one of the world's most experienced and knowledgeable M.E. experts. Dr. Hyde spoke about the difficulties many physicians experience in diagnosing ME/CFS and Fibromyalgia, and how he approaches the diagnostic process.
If you missed this event, a video of the entire lecture, including the Q&A, are now posted on this site and are also available on YouTube.
A written summary of Dr. Hyde's lecture has been added to this site. Link to the videos and written summary.
Is your dry mouth more than a nuisance? Does it sometimes burn? Do you have trouble chewing your food? Do you have increasingly more dental problems? Learn more in Dry Mouth Can be Detrimental to your Health.
Renewed efforts to reclassify Vicodin as Schedule II controlled substance
A topic receiving a lot of media attention and how it would impact patients if proposed changes go through. Find out more in Tighter Restrictions Recommended for Vicodin and Hydrocodone Products.
Advocacy - FDA webinar on Advocacy
On November 15, 2012, the Food and Drug Administration (FDA) held a webinar for the ME/CFS community on “Working Together for Change.” Jennie Spotila, creator and moderator of Occupy CFS, provides a summary of the FDA webinar highlights at her blog as well as thoughts about what the patient community needs to do for a successful outcome. Permission was granted by J. Spotila to link to articles/posts at Occupy CFS.
Chronic Fatigue Syndrome Advisory Committee (CFSAC)
Videos of the CFSAC Fall 2012 meeting (October 3-4) and the Committee's recommendations are now available. For those interested in Disability issues, the presentation from the Social Security Administration is well worth watching. Representatives from our Association presented at the meeting. Read the public testimony from patients and advocates. See the Special President's Letter and Dr. Gurwitt's Impressions for reports and commentary on the meeting. Read the Association's presentation.
Health Care Reform - The Massachusetts CFIDS/ME & FM Association has added a new category, Affordable Health Act - How Will It Unfold, with various reports and resources pertaining to health care reform and related issues. We will add more information and news as it develops.
View videos of recent lectures
View the video of Dr. David Bell's lecture, "25 Year Follow-up in Chronic Fatigue Syndrome: Rising Incapacity."
View the video of Dr. Anthony Komaroff's lecture, "The Latest Research on CFS."
NOTICE July 2012
The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as CFS/CFIDS/ME. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.
Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.