Donate Now
Do you have CFS?
Free Materials
What's New?
Youth Home Page
Resources & Links
Contact Us

What's New? Research & Policy

Our free e-newsletter has a new look and a new name Research1st News. Read the March issue and visit the archives for past issues.

Our spring webinar series wrapped up, but we've archived links to all the topics, resources and 5 of 6 recordings here on Research1st.

FDA has launched a new Patient Network website, with links to resources and ways to get involved with drug development. Read a summary at Research1st.

Toni Bernhard, JD, always strikes a chord with her blog posts about living with chronic illness. Her latest relays "12 Tips From 12 Years Sick." From her Psychology Today blog.


Visit our new blog, Research1st, for current, credible information about the latest research. 260+ posts so far, with new info added every week.

Recognizing the gap between the laboratory and the clinic, we moved to a translational research infrastructure, changing the landscape of ME/CFS research to accelerate the path for safe and effective treatments. Read more at Research1st.

The spring meeting of the federal CFS Advisory Committee begins May 22. You can view the live webcast at

BioCentury's Tim Fulmer covered the recent FDA workshop on drug development for CFS and ME. "The Patient Voice" abstract is available.

Donate - make a contribution
Support - Other Ways to Give
receive - get our newsletter
free materials - download
CFIDS Association Announces Leadership Transition
The CFIDS Association announces that longtime president and CEO, K. Kimberly McCleary, will be leaving her role as the organization’s CEO early this summer. Read the full announcement HERE!