Parents hold their baby for the first time in weeks after he's born with rare condition that causes his skin to blister off

By Daily Mail Reporter

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The parents of a baby whose skin blisters and falls off with the slightest touch have held their son for the first time in two weeks.

Little Easton Friedel was born on August 23 with a rare, and extremely painful, condition called Epidermolysis Bullosa, or EB, where his skin is red raw and missing in some areas.

His tiny body has to stay covered with bandages coated in Vaseline to prevent his skin peeling off, which has made it difficult for his parents to hold him.

Cuddle: Easton Friedel's parents, pictured, cuddle their newborn son who suffers from the rare skin condition

Cuddle: Easton Friedel's parents, pictured, cuddle their newborn son who suffers from the rare skin condition

But yesterday they got their chance. Wrapped in a Vaseline covered blanket, Danielle Friedel gently rocked Easton back and forth for the first time in two weeks.

 

'Right when he came out, his nurses noticed he was missing skin from his knees to his ankles and his elbows down to his hands,' Friedel told WLWT.

'The doctor came to look at him and didn't know really what it was.'

In pain: Baby Easton, pictured, has raw skin that peels off at the slightest touch

In pain: Baby Easton, pictured, has raw skin that peels off at the slightest touch

The family have travelled from their home in Auburn, New York, to the Cincinnati Children's Hospital.

There, Baby Easton will be treated by Dr Anne Lucky, a pediatric dermatologists who has dealt with the disease before.

Doctors say most babies with the condition died from infection before their first birthday but the adorable baby is battling for life in the hospital's intensive care unit.

'He came out crying because he's in pain... you can't take him home, and you can't do the things you want to do as a mother because I can't take away his pain,' Friedel told News 9 before setting off for Ohio with her husband and three older children.

Bandages: The little boy has to be wrapped in Vaseline-covered bandages

Bandages: The little boy has to be wrapped in Vaseline-covered bandages

'I can't make him feel any better.'

The family's community back in New York has raised more than $50,000 that will go towards bandages and other supplies to help keep little Easton comfortable.

But the Friedel's are settling into Cincinnati for the long haul, clinging to days like Wednesday when they can hold their little fighter, and perhaps take away some of his pain.

The comments below have not been moderated.

poor little man, I hope he gets a miracle like my husband's, cousin's son did who was born with EB, they said that he wouldn't live to see his first birthday, and by some miracle he "grew out of it" and is now a happy and healthy 5 year old in prep. Stay strong precious little man and keep on fighting!

Click to rate     Rating   12

"Typical. You ask God to bless this child but according to your beliefs this child is suffering because your God did this to him. If your God existed he'd deserve nothing but contempt and ridicule for his depravity and cruelness." - sacha , hereandthere ============ Just. Shut. Up. People have a right to deal with pain and tragedy in whichever way that comforts them. This is not the time or place to preach your atheist beliefs.

Click to rate     Rating   8

Doughegirl, you are so right on. The problem is that so few babies have this problem, so no one is willing to fundi it. That adorable baby breaks my heart, and I was crying when I read this story. If I ever in the lottery, I swear I will try to fund some kind of relief or better yet, cure

Click to rate     Rating   7

I work at the University of Minnesota Medical Center in the U. S. and have worked with EB children. Doctors here have been doing Bone Marrow Transplants on these children. Kids have been producing the enzymes needed for their skin after receiving new donor marrow. Google Dr. Jakob Tolar and Dr. John Wagner. Maybe they could help this family

Click to rate     Rating   19

Both of my sons have the same condition I wish them all the luck in the world! Another beautiful baby who suffers day in day out. It's so heart breaking to see your child in pain and knowing you can't do anything to stop them suffering x

Click to rate     Rating   10

I have been following Easton's progress on Facebook. This little angel is the son of a friend of a friend. It is wonderful how everyone is chipping in to help the family with the medical bills. Get better soon little Easton, we are all rooting for you!!

Click to rate     Rating   23

. God Bless you little one! You're going to have a rocky road in life but hang in there...the more people hear of this affliction, the more likely a cure will be found soon.------ doughegirl , pillsburybakery, 21/9/2012 15:17-----Typical. You ask God to bless this child but according to your beliefs this child is suffering because your God did this to him. If your God existed he'd deserve nothing but contempt and ridicule for his depravity and cruelness.

Click to rate     Rating   31

My cousin was born with this condition. It took many years of constant care, but he grew up to be able to play highschool football, and is now living a good life and going to law school. The early years are the most difficult, but if the family keeps up on the skin regimen, the outcome can be positive.

Click to rate     Rating   47

The babies with this condition are okay while still in the womb, surrounded by amniotic fluid. I wonder if there's are way for a pharma company to recreate some type of lotion or cream that mimics the amniotic fluid and would prevent the skin from drying out and falling off. God Bless you little one! You're going to have a rocky road in life but hang in there...the more people hear of this affliction, the more likely a cure will be found soon.

Click to rate     Rating   40

And they will STILL say there is a God and it's His will that this little mite suffers like this. What a load of rubbish. If there is a God then he is a cruel heartless one. No child deserves this.

Click to rate     Rating   18
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