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  3. Recent Posts by Others on Spina Bifida AssociationSee All
    • Gary Horneck
       I am a 60 year old, disabled, active auto racer, living in Huntsville Alabama. I race in an event called Autocross (SOLO). Autocross, is a time based race that takes place in large parking lots, with courses designated by traffic cones. I found Autocross last year, and it has been a life changing experience. The runs are only 60 seconds, but the excitement of a day out racing with all sorts of sports cars, and competing, lasts for weeks. My participation has given me a "live to race" mindset that is very powerful. It so helped my life, I want to share the experience with teens that would normally not be able to compete in this sport at all; those confined to wheelchairs and needing hand controls to operate a vehicle. I have purchased a 2011 WKA Clone Racing Kart which I have modified with hand controls. Karts are the entry level class for SCCA SOLO racing, and are quick, safe, racing tire equipped machines. These are not GoKarts, they turn times as fast as some cars. I have modified the engine and gears to make it suitable for our type of racing. A run through the course, and around the gates, is like... flying. I have done some testing with adult amputee's, they thought it was amazing fun, but my target group is the chair bound, 12-18 yr olds, which is our Formula Junior class. We have several young teens that race with us every month, those teens have driven it, but I have not been able to test with handicapped teens. I am not sure how to find my candidates, I was working on making the idea possible and overlooked that part I think. Any ideas, comments?
      32 · Yesterday at 1:17pm
    • Kim Patton
      5 more days until our gold.
      1 · Thursday at 6:53am
    • Melissa Brown
      Hi, my name is Melissa, I have an 8 year old daughter with myelomenigocel. She has had so many surgeries from the closure of her spine to double hip surgery, bladder and bowl surgery. Also recently she has had 19 shunt revisions since October 2011. That's not counting the ones she had before that. She also has epilepsy due to her chiari malformation. She stays sick. Her life is difficult because of this. Is there any parent who has been through this with there sb child? Does this get better as the child gets older? I know no one can predict ones future. I just wanted to see if anyone else has gone through this. Thanks.
      1 · Wednesday at 11:47pm
    • Laurel Greshel
       Hello! My name is Laurel and Amanda is my 29 year old daughter, born with spina bifida. We live in southeastern Michigan. This post is an attempt to network with fellow SB famillies and share with you the book "Amanda, Perfectly Made" that I wrote about the last 29 years. It is for you - I know how some of you feel. I have honestly shared the challenges and cheers faced through the years with doctors, surgeries, teachers, family, bowel and bladder issues, shunts, and the faith that held me together while I questioned "why?" The big scary milestone right now is we are finally moving Amanda into her own apartment the first of October. I invite you to read and follow my blog: www.justlaurel.com that will follow the details of moving Amanda out and will let you know a release date as publishing date draws near for my book.
      11 · Wednesday at 5:47pm
  4. Spina Bifida Association
    Yesterday
    Are you doing a race this fall? Running, cycling, triathlon, wheelchair racing? Want to do your race for free? Join Team Spina Bifida’s Choose Your Own Event program and you can get reimbursed for race expenses when you raise funds for SBA! http://www.teamspinabifida.org/faf/home/default.asp?ievent=1037766#.UEnoJiJqMWk
    Photo: Are you doing a race this fall? Running, cycling, triathlon, wheelchair racing? Want to do your race for free? Join Team Spina Bifida’s Choose Your Own Event program and you can get reimbursed for race expenses when you raise funds for SBA! http://www.teamspinabifida.org/faf/home/default.asp?ievent=1037766#.UEnoJiJqMWk
    24 · Comment ·
    • James A.Michels, Mesut Kacan and 80 others like this.
      • Mary Donnelly I believe that looks like my little Miss Maria Bournias in this picture up front there! :)
        Yesterday at 6:16am · 2
      • Maria Bournias Why yes, thank you Mary!!!! :) What a great feeling it is! I'M SO EXCITED THAT I'M NOW TRAINING FOR THE MARINE CORPS MARATHON!!!!! I can't think of a better experience than supporting and raising funds for TEAM SPINA BIFIDA!!! I never thought I could ever ride a bike growing up...and now I'll be riding 26 miles!!! What can't we do in this life... :)
        10 hours ago · 2
  6. Spina Bifida Association shared a link.
    Thursday
    In less than an hour watch Team USA go for the gold in Track and Field with Oscar Pistorius on their heels.
    Competition streams
    www.teamusa.org
    · Comment ·
    • Robert Morgan, Bill Olnick and 3 others like this.
    • Spina Bifida Association
      Thursday
      Sep 6, 2012 6:11am
      Team USA sprinters Jerome Singleton and Blake Leeper will take on South African Oscar Pistorius in the 100-meter final at the Paralympics on Thursday
      · Comment ·
    • Spina Bifida Association shared a link.
      Thursday
      Watch wheelchair basketball now!
      Sept. 6: Wheelchair Basketball
      www.teamusa.org
      Wheelchair Basketball
      · Comment ·
      • Bill Olnick, Aide Gonzalez and 23 others like this.

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