CHARLIE’S STORY – PART 3
Posted: under Cancer.
Charlie looks like a healthy eight-year-old boy. But nothing could be further from the truth. He now has to deal with incontinence. In a couple of months he will have to undergo yet another operation to stop the bladder from leaking. Until then, he needs to wear diapers. Hopefully this surgery will be a success. The leaking will then be a thing of the past, but the catheters will be with him for the rest of his life. His undersized bladder was augmented using part of his intestines and this “new bladder” will exit at his waist. Since Charlie’s new bladder will have no sensation of the need to urinate, he will learn to regulate his input of fluids and will have to empty his bladder every 2-4 hours for the rest of his life.The doctors don’t know if Charlie will able to function sexually when he’s older nor if he will be fertile. Because of his undersized penis, he has had to be given testosterone treatments to create more growth in order to do some surgeries. Aside from all that Charlie has endured, Liz is most worried about Charlie’s self-esteem. “Will he and others like him ever have a half-normal life? They are scared to go out on a date or to ever let anyone see them. From their embarrassing and stinky diapers to their undersized genitalia, there are many cases of sad and lonely older kids out there.”*38/165/1*