Village of the damned: Hundreds of mentally ill patients are shackled or locked away in Indonesian village where their suffering is blamed on 'incest and malnutrition' 

  • People ranging in age from 10 to 50 are shackled to the floor in Sidoharjo, Karangpatihan and Krebet in Indonesia
  • They suffer from severe physical retardation, also known as 'Kampung Idiot', which is akin to Down Syndrome
  • Over 400 people suffer from psychosocial disabilities in Ponorogo, East Java - and many live below the poverty line
  • Government officials and villagers blame incest, malnutrition and iodine deficiency as the cause for the illness

This is the harrowing Indonesian village where people with mental illnesses are shackled to the floor and locked up in dark, cell-like rooms.

In Sidoharjo, Karangpatihan and Krebet, both adolescents and adults suffer from severe physical retardation, also known as 'Kampung Idiot', which is comparable to Down's Syndrome.

The horrifying images show a 40-year-old woman called Sijum with Down's Syndrome lying immobile on her back as her mother spoon-feeds her, while Saimun, 45, sits on the ground in his house, where his legs have been chained for 20 years by his parents because he suffers from mental illness.

These victims live below the poverty line and many suffer from malnutrition, visual and hearing impairment - but villagers and government officials blame incest, malnutrition and iodine deficiency as the cause for their illness. 

Sinem, who suffers from Down's Syndrome, sits on the dank, wet floor of her house in Krebet Village in Jambon subdistrict of Indonesia

Sinem, who suffers from Down's Syndrome, sits on the dank, wet floor of her house in Krebet Village in Jambon subdistrict of Indonesia

Bosmot, 55, suffers from Down's Syndrome - government officials blame incest, malnutrition and iodine deficiency as the cause for the illness

Bosmot, 55, suffers from Down's Syndrome - government officials blame incest, malnutrition and iodine deficiency as the cause for the illness

JAMBON, PONOROGO, INDONESIA - MARCH 23:   Sinem, L, who suffers from Down Syndrome, sits in front of their house at Krebet Village in Jambon subdistrict on March 23, 2016 in Ponorogo district, Indonesia. Sinem is paralysed, mute and deaf. They are four brother and sister and all of them suffered from Down syndrome. More than 400 people suffer from psychosocial disabilities in Ponorogo, East Java, where villagers and government officials blamed incest, malnutrition and iodine deficiency as the cause for the illness. In villages such as Sidoharjo, Karangpatihan and Krebet, both adolescents and adults suffer from severe physical retardation, also known as "Kampung Idiot", which is comparable to Down Syndrome. These victims live below the poverty line with their family earning between $30 to $50 U.S. dollars per month and many suffer from malnutrition, visual and hearing impairment. A common practice in these villages was to keep those with psychosocial disabilities under pasung - shackled

Sinem, clad in a tattered shirt and shorts sits barefoot in the dirt of a dark, squalid room in the village of Krebet 

Saimun, 45, lies on the ground inside his house, where his legs have been chained for 20 years by his parents because he suffers from mental illness

Saimun, 45, lies on the ground inside his house, where his legs have been chained for 20 years by his parents because he suffers from mental illness

More than 400 people suffer from psychosocial disabilities in Ponorogo, East Java, and live in squalid conditions, with their family earning between 30 to 50 U.S. dollars per month.

A common practice in these villages was to keep those with psychosocial disabilities under pasung - shackled or locked up. Indonesia's government banned the practice of shackling in 1977 but failed to enforce it. 

According to Human Rights Watch, more than 57,000 people have been subjected to pasung once in their lives and around 18,800 are currently being shackled. 

Thousands of Indonesians with a mental illness are currently shackled, according to a Human Rights Watch (HRW) report released on Monday.

The 74-page report, 'Living in Hell: Abuses against People with Psychosocial Disabilities in Indonesia' examines how people with mental health conditions often end up chained or locked up in overcrowded and unsanitary institutions.

Chaining up the mentally ill has been illegal in Indonesia for nearly 40 years but remains rife across the country, especially in rural areas where health services are limited and belief in evil spirits prevail, according to HRW.

Suhananto, 30, sits inside a cage, where he has been locked up in a confined space for a year by his parents because he suffers from mental illness

Suhananto, 30, sits inside a cage, where he has been locked up in a confined space for a year by his parents because he suffers from mental illness

Legi, and her brother Saremon, who both suffer from Down Syndrome, are kept under 'pasung' - either shackled or locked up 

Legi, and her brother Saremon, who both suffer from Down Syndrome, are kept under 'pasung' - either shackled or locked up 

Simus is a 60-year-old Down's Syndrome sufferer, crouches in his dark house which is laden with threadbare rugs and bamboo thatching in Krebet Village

Simus is a 60-year-old Down's Syndrome sufferer, crouches in his dark house which is laden with threadbare rugs and bamboo thatching in Krebet Village

Dwi Sarnawati, 19, who suffers from Down's Syndrome, is one of many victims living below the poverty line with their family earning between 30 to 50 U.S. dollars per month

Dwi Sarnawati, 19, who suffers from Down's Syndrome, is one of many victims living below the poverty line with their family earning between 30 to 50 U.S. dollars per month

Gondek 50, who suffers from Down's Syndrome, cleans up leftover paddy collected from the harvest at Krebet village in Jambon subdistrict

Gondek 50, who suffers from Down's Syndrome, cleans up leftover paddy collected from the harvest at Krebet village in Jambon subdistrict

'Nobody should have to be shackled in Indonesia in 2016 - people told us again and again that it's like living in hell,' Kriti Sharma, disability rights researcher at the group and author of the report, told AFP.

As well as shackling, the report listed a litany of other abuses the mentally ill face in Indonesia - sexual violence, electroshock therapy, and restraint and seclusion in often overcrowded, unsanitary institutions.

There are just 48 mental hospitals in Indonesia, a country of 250 million, most of them in urban areas. 

Treatment options are scarce for the millions living in remote regions, leaving desperate families to turn to faith healers in the Muslim-majority nation, some of whom chain up patients.

Sati, 39, who suffers from Down's Syndrome, takes a bath assisted by her mother in her house. Many of the victims suffer from malnutrition, visual and hearing impairment

Sati, 39, who suffers from Down's Syndrome, takes a bath assisted by her mother in her house. Many of the victims suffer from malnutrition, visual and hearing impairment

Jamila, 13, who suffers from Down's Syndrome, lies on blue tarpualin spread out inside a house at Sidowayah village in Jambon subdistrict

Jamila, 13, who suffers from Down's Syndrome, lies on blue tarpualin spread out inside a house at Sidowayah village in Jambon subdistrict

Saimun, 45, lies on the ground inside his house, where his legs have been chained for 20 years by his parents because he suffers from mental illness

Saimun, 45, lies on the ground inside his house, where his legs have been chained for 20 years by his parents because he suffers from mental illness

HRW - who interviewed around 150 people for their report, from the mentally ill to health professionals - said there are currently almost 19,000 people in Indonesia who are either shackled or locked up in a confined space, a practice known locally as 'pasung'.

At least 14 million people in Indonesia aged 15 and over are thought to be suffering from some form of mental illness, according to health ministry data.

Shackling of mentally ill people happens across Asia but is particularly common in Indonesia, with studies showing that it is due to poor mental health services in rural areas and a lack of knowledge about suitable treatments.

Families that choose not to send mentally ill relatives to faith healers sometimes take matters into their own hands.

Andika, 17, who suffers from Down's Syndrome, takes a bath assisted by his mother Supini at Sidoarjo village

Andika, 17, who suffers from Down's Syndrome, takes a bath assisted by his mother Supini at Sidoarjo village

Faiz, who is only 10, suffers from Down's Syndrome and is assisted by his mother Tumini, inside their house

Faiz, who is only 10, suffers from Down's Syndrome and is assisted by his mother Tumini, inside their house

Faiz is pictured lying spreadeagled on filthy-looking bed sheets - Indonesia's government banned the practice of shackling in 1977 but failed to enforce it

Faiz is pictured lying spreadeagled on filthy-looking bed sheets - Indonesia's government banned the practice of shackling in 1977 but failed to enforce it

Chaining up the mentally ill has been illegal in Indonesia for nearly 40 years but still happens across the country, especially in rural areas where health services are limited and belief in evil spirits prevail, according to Human Rights Watch (pictured Andika, 17, who has Down's Syndrome, plays with his mother Supini)

Chaining up the mentally ill has been illegal in Indonesia for nearly 40 years but still happens across the country, especially in rural areas where health services are limited and belief in evil spirits prevail, according to Human Rights Watch (pictured Andika, 17, who has Down's Syndrome, plays with his mother Supini)

Sijum, 40, who suffers from Down syndrome, lies immobile on her back as her mother Toyimah spoons food into her mouth

Sijum, 40, who suffers from Down syndrome, lies immobile on her back as her mother Toyimah spoons food into her mouth

There are just 48 mental hospitals in Indonesia, a country of 250 million, most of them in urban areas. Treatment options are scarce for the millions living in remote regions, leaving desperate families to turn to faith healers in the Muslim-majority nation (pictured 50-year-old Gondek)

There are just 48 mental hospitals in Indonesia, a country of 250 million, most of them in urban areas. Treatment options are scarce for the millions living in remote regions, leaving desperate families to turn to faith healers in the Muslim-majority nation (pictured 50-year-old Gondek)

WHAT IS DOWN'S SYNDROME? 

Down's syndrome is caused by the presence of an extra chromosome in the cells of a developing baby. It is not hereditary. It is the most common cause of severe mental disability and is often associated with physical problems such as heart defects and difficulties with sight and hearing. About 600 children are born with Down's syndrome in Britain each year - one for every 1,000 births.

TESTING FOR DOWN'S SYNDROME

Expectant mothers are scanned by ultrasound between ten and 13 weeks of pregnancy. During the examination, doctors measure the nuchal translucency thickness, which is a space at the back of the baby's neck.

At the same appointment, a sample of blood will be taken to measure the concentration of pregnancy associated plasma protein-A (PAPP-A). A risk assessment may be made from combining these results with the mother's age.

Between 15 and 22 weeks, a second blood sample is taken, and the results of the two samples combined to produce a a more accurate risk assessment.

If the result suggests that there is a high risk of having a baby with Down's syndrome (a chance of 1 in 150 or greater), the mother will be offered an invasive test, either amniocentesis or chorionic villus sampling (CVS). Even then, most women in this risk category will not have Down's syndrome babies..

No test can guarantee that a baby is free of all birth defects, but if the result of the amniocentesis or CVS is negative, it will almost certainly rule out Down's syndrome or other chromosome abnormalities.

WHY IS AGE IMPORTANT?

The chances of having a Down's syndrome baby increase with age. At 20, the risk is one in 1,529; at 25, one in 1,351; at 30, one in 910; at age 35, one in 384; at 40, one in 112; and at 45, one in 28.

However, most Down's syndrome babies are born to women aged between 25 and 30, as statistically that is the average age when most babies are conceived. 

NEW TESTS

A test has been developed which checks whether a baby in the womb has a nose bone during the 11 to 14 week scan.

Research shows that foetuses without this bone are 150 times more likely to have Down's syndrome. Professor Kypros Nicolaides, who developed the test, says its accuracy means two-thirds of women will be spared 'false-positive' results produced from existing blood and scanning tests.

At present, 30,000 pregnant women wrongly diagnosed as having a baby at high risk of Down's agree to tests which will be unnecessary. 

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