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Our son Robbie was born on our last Disneyworld /Florida /Christmas
vacation
3 months before he was due.
I developed severe preeclampsia and was hospitalized. My mom and
dad watched my other children as I was transferred to a level 3
NICU in Tampa. I was getting sicker and the baby was not moving
anymore. His heartbeat was very faint and he was dying. The doctors
set up for an emergency c-section but warned me that I may not make
it. Delivery was the only cure, and as I went into HELLP syndrome
I was given my last rites and had to leave it to God.
Well, the baby and I made it. Robbie was born on December 31, 2001
at 1 pound, 3 ounces and was 11 inches long. He was not doing very
well and given little to no chance of survival. His first week he
had two small brain bleeds, hypertension, high and low blood pressure,
blood transfusions, platelets, plasma, low O2 saturations , fluid
on and around the heart and lungs, BPD, GEED reflux, ROP, and more.
He had just about every problem a preemie baby could have, and then
some.
When he was a week old, we were told that Robbie was dying. They
could not bring his O2 saturations up and explained that brain damage
may occur. They told us the only two choices we could make were
to keep him on the vent where he would die or be in a vegetative
state, or take him off the vent and hold him as he passes. I begged
them to try something
anything. The doctor tried nitric oxide
treatment. After day two, his O2 level came up some
but not
alot. The doctors and nurses all worked very hard for Robbie, but
he worked the hardest. While in Tampa, the NICU let us get involved
with many things, including their annual March of Dimes WalkAmerica
fundraiser.
After Robbie's 8-month stay in Tampa, he was finally stable enough
to be transported to the University of Michigan's Mott Children's
Hospital in Ann Arbor. We were finally back home. After a total
of 10 operations and an 11-month hospital stay, he finally got to
come home with us on December 3, 2002.
Now Robbie is coming up on his second year, and there is so much
to look forward to. He is weaning off the vent. He is also starting
to take food orally, so hopefully he will get rid of the g-tube
for feeding. They think his ASD (hole in the heart) will close on
its own, and he wears glasses.
So not only did God bless all of us, but so did the March of Dimes.
I honestly know that if it were not for them, as well as the dedicated
doctors and nurses, the support of his siblings and Robbie's will
to survive, he would not be here today giving us happiness and joy.
We are very grateful for the March of Dimes and will always help
in any way we can. We were not aware of everything they did before
Robbie was born. Now that we do, we plan to always help raise awareness
and lend our full support.
Thank you.
Beth
Proud Mom to 2 amazing children and 1 tiny little hero
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