The Story of CureDuchenne™

Imagine having a beautiful baby boy. For four years, your child thrives and is the light of your life. One day you notice he has difficulty standing up. His calves are swollen, and he can’t keep up with other children. You take him to his pediatrician, who says he’s probably just a slow starter and not to worry. So you put your concerns aside. You watch your beautiful young child cry because he can’t keep up with his friends and asks you why.

At five, you finally find a specialist that gives a proper diagnosis of Duchenne Muscular Dystrophy. You’re told his muscles will die and not regenerate. He will be in a wheel chair by 10 and will probably not survive his teens. To make things worse, had he been properly diagnosed earlier, treatment could have been started sooner that would have kept him out of a wheel chair longer. You find out Duchenne Muscular Dystrophy is the leading killer of young boys and that two boys die of Duchenne Muscular Dystrophy every day, and you scream frustration as to why you haven’t heard about Duchenne Muscular Dystrophy before.