KidsRPumping


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Don't Worry Be Happy

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Welcome to:
KidsRPumping:-)



The purpose of this webpage is to provide a place for people to share their experiences with children on the insulin pump. The insulin infusion pump is a viable and wonderful alternative to injections for insulin delivery to children with diabetes.


This webpage is dedicated to every child who lives everyday with diabetes. You children deserve a healthy, carefree, fun life. You are all my heroes and I admire all you do every day to keep yourselves healthy and strong.

children
kids holding hands

ZACHARY STARTED PUMPING AT AGE SEVEN!

My son, Zachary, was diagnosed with diabetes on February 18, 1989, at the tender toddler age of 15 months. After six years of countless injections, rigid exchange diet, clock watching, and uncontrolled blood sugars (not from a lack of trying), Zachary went on the Disetronic insulin pump in July of 1995, at the sweet age of 7-1/2 years old. Today, I can tell you that these have been the best 4+ years of our lives since the initial diagnosis. His blood sugars are infinitely more controllable. His life is once again carefree and spontaneous. He eats when and what he wants to (within reason). He has more energy than ever before. He is no longer obsessed with food. Best of all, he loves the pump.

Ellen H. Ullman,
Mom, Webmaster, Friend.
CamelsRFun@aol.com

Click here for Zachary's tour of Diabetes Research Institute



The insulin pump is not the cure, it's not without frustrations, but it is LIBERATING!
Pumping insulin involves a regimen of troubleshooting and can be extremely frustrating because while you want your child's blood sugars always in the target zone, it is still diabetes and that means highs and lows. Kids can have soaring high blood sugars (and keotacidocis) if not watched carefully, if you go too long between site changes, pump malfunction.... The child has to be very responsible and test blood frequently in school and at friends' houses, and you as the parent have to watch over the pump. Zachary is famous for telling me his pump has 5 units left five minutes before time to leave for school....

When it works well, which it does for us most of the time, it's fabulous.
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Read what others have to say about children on the insulin pump:

A Pediatric Endocrinologist Comments:

"I have over 200 children pumping insulin in my practice now. I think pumping is as superior to shots as blood glucose monitoring is to testing urine glucose with clinitest tablets."

I'm a pedatric endocrinologist. I have seen more consistent positive results from pumping Humalog that any other single change that I know of.   For me, I think putting Humalog in an insulin pump is the best advice I've been able to give since I finished my training in 1983.  The children on the pump and their parents are almost always amazed at how well it works. Kids who have high blood sugars pour those calories out in the urine. Their brains know the calories are leaving the body and wants to replace them, so the kids are hungry all the time. So they eat. The blood sugars then stay high. It's like a mosquito bite...the more you scratch it, the more it itches. When the blood sugars are held in check for a period of time, possible with pumping Humalog, the brain wises up and the hunger disappears. When you're not hungry all the time, you feel better. I used to only use pumps in children who were getting sick all the time. I've changed my mind about that.

Lots of kids look at their blood sugars like grades. When they see a high one, they feel like they just got a D on a math test. Blood sugars, or hemoglobin A1c levels for that matter, aren't grades, they're more like numbers on a speedometer. Children, particularly young teenagers, hate to see high blood sugars...so they don't like to test them. Their high blood sugars are, in and of themselves, a disincentive to checking them. When they are pumping Humalog, they're likely to see target blood sugars when they test, and my experience is that I see them checking more. You check more, you make appropriate changes more and your control is better. For this reason, I think that the pump should be considered even in kids who refuse to test their blood sugars. It frequently breaks the cycle of pain. Me, I'm a believer.

The pump takes a high level of motivation. I liken the difference between the pump and shots to a car and a bicycle. The former is vastly superior to the other, but the potential for danger is also greater. I have had to take some kids off the pump who won't check their blood sugars, change their sites appropriately, or won't follow the rules of the road. Drivers usually cause accidents, I say, not the cars they're driving. If the people running the pump aren't responsible enough to stay safe, it's better their "license" is suspended for awhile. It isn't for everybody.

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READ WHAT A SCHOOL NURSE HAS TO SAY:


As the school nurse in Zachary's Private Day School, I had only seen Zachary for non-emergency visits in my office two times for hypoglycemic events over the past year. Thank G-d, the pump is letting Zachary control his diabetes and his diabetes in not controlling him. Also, Zachary is blessed to have parents who keep searching and researching for the betterment of not only their son but to all.

Keep up the Great Work!
Iva Morris R.N., 1997

*Note from mom: in the last 2 years Zachary has only gone to the nurse to replenish batteries in his pump, or when the new nurse asked him to come to her office to show and explain how his pump works.  Zachary treats his lows in class. He usually catches them in the 60s.
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New:                  

13 Year Old Carola's Pump Story

6/23/00

hey, my name is carola and i'm 13 years old. i got the pump in february 2000, and i'm very happy with it. i way diagnosed when i was 11, and was on shots for 2 years. i started out with 2 shots, and at the end i had more than 5 shots a day. my sugars were not too bad at first, it was 568 when i got in the hospital. i stayed 2 days in ICU, and 2 days in regular. then, after 2 years of shots, a normal morning blood sugar was around 500, and i really didn't feel good. so i heard about the pump, and told my parents. my doctor helped us get it and worked everything out. i've been on the pump for about 6 months now, and i love it.

Carola

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    Brynn Starts Pumping at Age 3

Our 3 yr old was diagnosed one year ago. After 9 months of shots, mood swings, rigid meal schedules and alot of frustration, we looked at the pump. I wasn't sure what we were subjecting our son to, but I knew that what we were currently doing wasn't even coming close to simulating "normal life" for a toddler. Since going on the pump, Brynn lives as normal a life as he will until a cure is found. Yes the pump requires more of my time, but his quality of life has improved 100%, if I can't cure him then at least I can do this much. When he's older he will takeover a lot of what I do, for now, I'm just glad that we have this option.

Teresa

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 7 Year Old Michael

Michael was diagnosed with diabetes when he was 2 years old. From the beginning, his diabetes was not easy to control. He started with 2-3 shots per day, with ups and downs - from 30's & 40's to 400's to hi (over 600). His blood sugar even went as low as 17 !! Michael's AlC's were running between 10.5 - 14.5!!

After trying everything, we started traveling from Long Island, New York to Boston, Mass. to take Michael to Joslin Diabetes Center. He was doing a lot better, but his blood sugars were still very erratic. He was hospitalized a couple of times, the last "low" ended in a seizure.

January of 1999 at age 6, Michael started intensive insulin therapy - a shot of insulin at every meal. This regiment started interferring with his lifestyle -and interferring with Michael from being a regular kid. His blood sugars were still up and down - Going to 5-6 shots a day and still feeling horrible - this was not working - Michael missed 35 days of school the last quarter from February till June.

After about 6 months of 5-6 shots a day, we decided to speak with our doctors about the insulin pump. Although Michael was only 6 years old, our doctor decided to give the pump a try. WHAT A GREAT DECISION WE MADE - TO MICHAEL, HIS PUMP IS A CURE!!!!

Michael now enjoys school everyday, riding his bike, playing drums, playing hockey & baseball and is looking forward to camp. He is like a new child -The pump is definitely not for everyone - The Kids R Pumping website introduced children on insulin pumps to my husband and me and gave us the courage to investigate the pump for our young child.

Thanks to all of you who shared your stories about your children on the website! It was a great to our family!!

Carri Chicurel

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  Steve's Controlling His Diabetes

Monday, August 7th, 1991 was a day my family and I will never forget. I can remember it as clearly as yesterday; I was sitting in McDonaldís with my grandmother eating a pastry when my mother came running in. "We have to go to the hospital", she said. It was this day I was diagnosed with Type 1, or juvenile, diabetes. Changes were needed so I could live a healthy life. Three weeks after I was diagnosed, I started kindergarten. At first it was hard for me to be different in the classroom, but the past few years have been more enjoyable because people donít tease you if youíre different. Ever since my diagnosis in 1991, major improvements in technology have allowed me to live my life as a normal teenager without the burden of diabetes always hanging over me. I am grateful for these new technologies, but the one day Iíll be happiest is when a cure is announced.

After my diagnosis, major changes were needed in my lifestyle. I was started on a strict diet, two shots of insulin a day, and at least four finger sticks daily to determine my blood sugar levels. Trips to my endocrinologist were needed monthly. Many changes were also needed for my parents. They spent many sleepless nights checking up on me and testing my blood sugar. We also had to measure my food, learn how to treat high and low blood sugars, and learn how to fit exercise into my daily regimen.

Three weeks after I was diagnosed, I started kindergarten at Parker Farms Elementary School. Everybody was very worried about me starting school that day. In fact, my mother was so nervous she followed the bus to school! The first one or two years in school were very hard for me because my classmates were too young to understand what diabetes actually was. I did, however, get plenty of support from my teachers and my school nurse. As I continued my schooling, it got easier for me to fit in because people came to know me for who I am and it didnít matter that I had diabetes. Now that I am in the eighth grade, fitting in with classmates is the least of my worries.

Last spring, after talking with some friends on insulin pumps, I decided to investigate the possibility of going on a pump to take even better control of my diabetes. I questioned my endocrinologist and she responded positively to my request. On July 6, 1999, eight years and 8,700 shots after my diagnosis, I started on CSII (continuous subcutaneous insulin infusion), which is the medical term for insulin pumping. While not a cure, my insulin pump has changed my life again, this time for the better. I have freedom from eating schedules and daily shots. I am now living a life of a normal teenager and I control my diabetes rather than having it control me.

Diabetes has affected my life in many ways. Not all of them have been negative. I think that by having diabetes from such a young age, I have had to become more mature and responsible than other kids, and this has had a positive effect on my life.

Steve

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           7 Year Old Angela Loves Not Having Any More Shots!

I just have to share this story with you. My daughter, Angela has had diabetes for 3 years. She was on 2-3 shots per day using 3 different insulins and her blood sugars were very erratic. Angela is now almost 8 yrs old has been on the pump since March 9. She feels better, sleeps better and loves not having any more shots. Her last HbA1C was 9.2 and now, with only being on the pump for 6 weeks, it's down to 8.1 already. We are thrilled, like we are coming out of a bubble and are free!! When Angela received her own pump, before we were using a loaner. She greeting the Fed Ex delivery man with the biggest smile. Anyway, today Angela had her physical with her pediatrician, Dr. Murphy. During the physical Angela said she felt low and proceeded to get her meter and check her BG. Both Dr. Murphy and the med student who was with her were just amazed that Angela could tell when she felt low did her BG by herself. Angela was low and asked me for a juice and said to the Drs "the juice brings me right up so I feel better" Angela then told them about her pump and showed them her site and talked about not having shots anymore. They were sitting there with their mouths open--Dr. Murphy then was telling me when she received the letter from Angela's endo about the pump, she read all the information, the basal rates and formulas to calculate doses and she was beginning to wonder if the pump was really better, could kids and their parents do this--all the numbers overwhelmed her. But she said after talking to Angela and I--she is a believer!! She thinks it is so great that Angela takes charge of her diabetes and I think I take that for granted because she has been doing her own BGs practically since she was diagnosed at almost 5 yrs old. Angela is my little wonder woman. I thought you would love to hear about another pediatrican learning about our pump kids! We are from Rochester, NY.

Regina

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15 Year Old Tara Feels Healthier!

Hi everyone! My name is Tara and I am 15 years old. I went on the pump in June of '99. I was first diagnosed with diabetes in January of '96, I was 11 years old. I was always on a strict schedule for eating and I was up to three shots a day. After taking injections for almost four years, I got tired of it. Eating what I had to when I had to and taking injections at a certain time. My parents and I talked to my doctor about going on the pump and three months after that I was on it! Let me tell you it was the best choice I have ever made! My blood sugar has been at its best with less than four high sugars a week and I can eat what I want, when I want. The first infusion set I used was the Silhouette, but it was very painful for me. My sites were getting infected and it was hard to put it. I changed to the Soft Set Micro with an inserter in December. I never feel it when I change my infusion set. The pump has given me a lot of freedom. I feel healthier and great! I recommend it for everyone who has diabetes!

Write to Tara

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12 Year Old Jessie

Hi, my name is Jessie and I was hoping that you could post my story:

I am 12 years old and I was diagnosed on Jan. 30th 1998. I've had diabetes for two years now. I went to Bearskin Meadow family camp the summer of '98 and kids camp the summer of '99. Going to camp was a great experience for me because some of my friends there had insulin pumps, even my counselors too. I asked them a couple of questions about it and they said that you get more freedom, get to sleep in, and skip meals. And I thought WOW this is great! Maybe I should try it. So when I got home from camp I told my mom about it and I said that I really wanted it. My mom got some information in the mail about it and she thought it was great too. My mom talked to my diabetes clinician and found some classes for me to go to. I went to the two training classes. During the second training class I had to put in the soft set/silhouette. I use the soft sets. I was scared at first to put in the needle, so I sat there for 45 minutes with the soft sorter in my hand against my stomach. Then after those 45 minutes I had the courage to push the button. I could not feel it! I didn't even know it was in after I pushed the button. So I got the pump in August 1999. And I LOVE IT! It has been great for me. No more shots only when I put the soft set in which is every 2 to 3 days. It's GREAT!

If you have any questions or just want to chat e-mail me :)  Jessie

blowing bubbles

Marley diagnosed at 11 months, pumping at 19 months

Marley

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13 Year Old Mandi

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Jacob Pumping at 23 Months!

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14 Year Old Jessica tells her thoughts on the pump

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12 Year Old Cadie

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12-1/2 Year Old Caley

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Fifteen Year Old Caitlin

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Nine Year Old Jessica

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Six Year Old Jessica

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Kevin Ramm Loves The Pump

(Started pumping at age 10)

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12 Year Old Erin

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Amanda, started pumping at 14,

on, off, and back on the pump

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8 Year Old Kayla

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Kristen ,Pumping at Age 11

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Zephyr Started Pumping at 22 Months Old

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Carrie Started Pumping at 13

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Chris Started Pumping at Age 8

Chris

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Amy, Pumping at Age 11

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Erica - 10-1/2 - Mom's View 9 Days Into Pumping

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Grant - Pumping on Second Birthday

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Chelsey Started Pumping at 13

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3 Year Old Sydney :-)

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Alexander - Pumping at Age 2

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Cindy's Story Hear From A Teen

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Spencer Pumping at age 10

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13 Year Old Sarah

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Bari Started Pumping at 11

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5 Year Old Kayla

Energetic Again!!!

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Lauren's Story

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10 YEAR OLD JUSTIN

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5 YEAR OLD MEGAN

 Megan

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4 Year Old Malcolm

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Year Old Will

(who loves star wars)

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Emily

Plays Softball and is on the Swim Team

Emily

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Travis's Difficult Struggle

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BYE BYE NEEDLES - HELLO PUMP

By Six Year Old Brendan Bannister

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A  DAD'S  PERSPECTIVE

Brandon Started Pumping At Age 8

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DREW STARTED PUMPING

AT AGE 4-1/2

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COLLEEN WILL "PUMP" YOU UP!

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STEPHANIE STARTED PUMPING JUST BEFORE TURNING 14

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Ten Year Old Jennifer's Story

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2 YEAR OLD HANNAH'S STORY

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10 year old Ravi's Story

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HEAR FROM  THE MOM OF TEN YEAR OLD MIKE

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DANA'S MOM TELLS HER STORY

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15 YEAR OLD CAIT

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12 Year Old Sam Tells His Story:

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Derek's Mom Tells His Story

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Nine year old Ryan

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ELISSA'S STORY IS TOLD BY HER MOTHER:
(Elissa started pumping at age 3)

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Gaby Mejia's Story
(Told by his mom who loves and admires him so)

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Here's Nicki's story:

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JENNIFER'S MOM TELLS HER STORY:

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A Parent From AOL Writes:
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MELISSA'S MOM SPEAKS CANDIDLY:

Melissa

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Twelve Year Old Mauro

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If you have a child's pump story to add: please e-mail it to me at CamelsRFun@aol.com and I will post it to this web site. Thank you for empowering others to know they have a choice for their children.

If you need additional information regarding children and the insulin pump click here .

For abstracts on children using the insulin pump and a chapter from one pediatric endocrinologist's book, click here.

New: Helpful Hints Page from experienced parents of pumpers and pumpers themselves .

******** Other Links********

p.s. This site is also dedicated to my husband, Jeffry, who thought he was introducing me to the www and now considers it my irrational obsession. (He's right, "thanks honey!") I also want to thank my children Zachary and Sasha, "I love, adore and cherish you two treasures, and thanks for letting me have the computer most of the time!"
Let me know what you think about my page. Send mail by clicking here.

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The Gray Ribbon

The gray is for the gray clouds hanging overhead,

All of the finger pricks are the color red,

The silver is for all the dreams and prayers that we send,

Please wear this ribbon and hope that diabetes will end!

written by:

Liz DeMello, age 13

sister to Chris Age 7, dx'd 3 years ago

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