My name is Jean-Paul Bovee. I am 32 years
old and was diagnosed AS on the spectrum at age 3 and a half,
so dealing with the autism spectrum has been a lifelong thing.
I am an Information Specialist at the University of Missouri-Kansas
City Institute for Human Development, Missouri Developmental Disabilities
Resource Center and have been in this position for over six years.
I have a B.A. in European History from Southwest Missouri State
University in Springfield, Missouri; an M.A. in Medieval and Roman
History from the University of Kansas; and an M.A. in Library
and Informational Science from the University of Missouri-Columbia.
Commitment to adult services, both for the
spectrum and in the developmental disabilities field, has been
in both my personal and work experiences. People are adults for
far longer than they are children, whether one is on the spectrum
or not. It is an area that tends to get overlooked by media information
and by the advertising within the autism spectrum field. But,
the issues are long-term and includes employment, housing, relationships
(of all kinds), geriatrics, and all of the things that adults
have to deal with. These are issues that have to be discussed.
My experiences in this area come from knowing
a lot of people on the spectrum and also from a previous job as
a Disability/Autism Consultant for the Central Missouri Regional
Center for Persons With Developmental Disabilities in Columbia,
Missouri while I was a student at the University of Missouri-Columbia.
From my work experiences, I got to see the adult services in our
state and they do not look good at all. Sheltered workshops, day
habilitation, and enclaves at restaurants is not the way to go.
There need to be pay for as many people as possible. The group
homes that I have seen are not acceptable either.
I have friends that have never had a full-time job with decent
pay. The unemployment
rate on the spectrum is somewhere around 90 percent, which is
unacceptable. Housing, geriatrics, and other things very rarely
get discussed at all within the autism community. As these are
issues for nonautistic people, these are also issues for people
on the spectrum. These are things that I would like to see discussed
in our committee.
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