Leading the fight against Neurofibromatosis

Welcome to the Neurofibromatosis Association (UK)


25 Years....1982 to 2007

Louise has a plexiform neurofibroma on her handNeurofibromatosis is one of our most common genetic disorders, affecting 1 in every 2,500 people worldwide including 25,000 in this country alone. It can affect any family, with no previous history of neurofibromatosis, through new gene mutation.

As yet there is no cure.

Recent news on face transplants - Click here to find out more

Louise has a plexiform neurofibroma on her handGift aid it
Find out how it what it is and how it work Click here.

 

 

 

Louise has a plexiform neurofibroma on her handThe London Marathon '07
CONGRATULATIONS TO ALL OUR RUNNERS IN THIS YEARS MARATHON – YOU ALL DID A FANTASTIC JOB!’
Click here to see this years photos.


Louise has a plexiform neurofibroma on her handCome and join us in New York! Next year you can run for us in
New York, Chicago, Boston and Berlin!

Click here for details.





 

Click the links below to download:

- Invitation to the AGM 07'
- Booking form for AGM 07'
- 06' - 07' NFA Newsletter

The Neurofibromatosis Association
Quayside House
38 High Street
Kingston upon Thames
KT1 1HL
Surrey
United Kingdom

Member of the European Federation of
Neurofibromatosis Associations


Raising awareness, lifting spirits.

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