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Welcome to the Aicardi Syndrome website. We are glad you have found us! We hope that this site can provide information and comfort to families and friends of children diagnosed with Aicardi Syndrome.

If you are here because of a newly diagnosed child, please let us know who you are. Visit our support and contacts page to sign up for our newsletter, join our email support group, and contact your regional coordinator. These resources can hopefully answer some of the questions you may have, as well as provide support.

Si prefiere leer esta informacion en español, haga click aqui
Se a sua primeira língua for o Português –clique aqui
Si vous parlez français, cliquez ici
Wenn Sie Deutsch sprechen, bitte hier weiter
Se parlate italiano, cliccate qui
Als u Nederlands spreekt, klik dan hier
 
 

 

We're working on improvements to the website! If you have suggestions or would like to help (technical skills not required), please email web@aicardisyndrome.org or click here to leave us an anonymous suggestion.

What is new on the website?
 
Fall Fun Day (October 6, 2007, Michigan)  added September 24, 2007
Halloweeen Party report (October 2006, FL)  added September 24, 2007
Benefit Concert (August 2007, New Jersey)  updated September 6, 2007
 
 
Meet ...
Ava Shaye Gumson  updated September 25, 2007
David Royall  updated September 04, 2007
Alessandra Ericka Montero Sedano  added August 30, 2007
Ashtyn Smith  updated August 29, 2007
 
In Loving Memory ...
Leah Hagedorn  updated September 15, 2007


Please Contact us with website suggestions and technical problem reports.