Heart Month

In honor of Heart Month, I’m going to try to post some of my heart memories from growing up. I know there are parents out there that probably wonder how much their kids remember about the surgeries and procedures they are forced to endure. Perhaps this will be a comfort? One can hope.

One of my earliest memories is from when I got my shunt. I was only 5 years old, so I’m not positive how much of my memory is from seeing pictures and hearing stories, or are actual memories. Regardless, I don’t have any memories of the pain or anything negative, even though I know (now) how painful it must have been. No, my most vivid memory is of a little girl that was also in the hospital and her parents.

After my surgery I was encouraged to walk the halls. My mom had gotten me one of those electronic dogs that would walk a few steps, sit down, bark, then walk a few more steps to encourage me to do this walking. I spent a LOT of time in the hallway. As a matter of fact, that dog walked so much the fabric on its feet wore through! On my walks we always passed by the room of another patient, Rebecca.

Rebecca was 2 or 3 years old and had been hit by a car in a parking lot. Her legs were crushed, so she couldn’t walk the halls. But her parents, scared as I know they must have been, were so positive and upbeat (from my 5 year old perspective). My mom became friends with them, of course, and every time we made our rounds we would stop and visit with Rebecca and her parents. As we would leave her parents would peek their heads out of the doorway, one above the other, and say “See you later alligator!” “After awhile crocodile!” I loved that. And now, any time I hear that phrase I think of Rebecca and her parents.

I’ve heard many people say they were traumatized by their early surgeries. And I can honestly say that I have no bad memories from that visit. I don’t know if it was the hospital staff or my parents that made it possible for me to only remember the good things. My mom actually took pictures and made a scrapbook that I was able to look back on and I’m sure that helped shaped my memories. I still like to pull out the scrapbook once in awhile (though it’s seriously falling apart now).

When people think of heart disease, many make the mistake of thinking it effects only the old. And those that remember that the number one birth defect, effecting 1 in 100 births, effects the heart tend to only think of the babies and very young. But those babies are now (thanks to medical technology) living to be adults. And we have a whole new set of problems. We have adult problems that the pediatric cardiologists don’t understand and congenital problems that the adult cardiologists don’t understand. A new specialty is forming in Adults with Congenital Heart Defects. But it’s still very new and there are many that have to travel out of state to get this specialized care.

Supporting the American Heart Association and other organizations (such as Adult Congenital Heart Association) will help this specialty grow as the population of adults with congenital heart defects continues to climb.

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From the Heart

Me and the kids

I'm a CHD survivor second and mom to two great kids first!

As I mentioned in my initial post about the Heart Project, I have a personal interest in raising funds and awareness for Congenital Heart Defects. I am an adult with congenital heart defects.

I was born in 1976 with complex congenital heart defects (CHD), including situs inversus totalus (all organs mirror imaged from “normal”), CCTGV (congenitally corrected transposition of the great vessles: the right and left sides of my heart have been reversed in function due to the switch of the “great vessels”), large ASD and VSD (holes between the top and bottom chambers of my heart), and pulminary stenosis (a narrowing of the pulminary artery).

I have since undergone many surgeries. My first, a shunt, was when I was 5 years old. My most recent was one year ago to replace the generator on my ICD (internal cardiac defibrillator). The total comes to 20 at this time. Not all of them have been heart related, surprisingly enough!

I met my husband when I was 19 and a freshman in college. We started dating a month after becoming friends. We continued to date for the next 5 years, until he finally “popped the question” on our 5th anniversary. We married 6 months later in June of 2001. I had my second open heart surgery one week after our first anniversary. He has been there for 12 of my 16 surgeries. He has known from the very beginning that I would not be able to carry his child, but he loves me anyway. We are so lucky to have each other and wanted very much to have children.

We originally thought the only option available to us would be adoption. However, a coworker (and my mother) encouraged us to look into surrogacy. After years of research, saving, and praying, we found our wonderful surrogate and are now parents to two and a half year old twins.

My life is not my CHD. I live every moment for my kids. But sometimes my heart does step in the way of my ability to do all that I want to for them. I am so blessed to have been born in a time when not only has medical technology made it possible for someone like me to become a mother through surrogacy, but has also made it possible for me to be alive to see them grow. Had I been born in another time, it is almost certain I would not have lived to see adulthood.

The research that the American Heart Association does for kids and adults with CHD is invaluable. Please consider donating and spreading the word. In return for your $5 donation, you will receive The Heart Project eBook as a gift.

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Here is a link to a pinterest board showing just a small selection of the people you are helping. Please take a moment to read their stories.

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A Trip to Holland

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Collaborative Heart Project Fundraiser

As I’ve mentioned in previous posts, I had the pleasure of working on a collaborative heart project. This project is now available for you!

In an effort to raise funds for a great cause, I have had the great privilege of collaborating with more than 70 fellow bloggers to create an e-book showcasing our craft ideas. This e-book is filled with over 100 gorgeous heart-shaped crafts, with e-links to the “how-to” on each crafter’s blog, and will be available for purchase throughout the entire month of February. With your donation of five ($5) dollars (U.S funds) to the American Heart Association, you will receive this wonderful e-book as a gift. Downloads to the e-books will be available on each of our blogs through the end of February.

Jamie at Hands on : as we grow has managed this project, and she has a very personal reason for wanting to support this charity. And as my long-time readers know, I do as well, being a Congenital Heart Defect patient myself. Jamie’s done an outstanding job of creating a quality book to bring in donations. It really is something special. I have seen many of the pictures of the projects that fill the pages, and they are all absolutely beautiful. Here is a sneak preview of what you will find.

Make your donation now!

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US $5.00 Donation

There will also be a hard copy (paper back) book available for twenty ($20) dollars (U.S. funds). Five dollars from every purchase of a the hard-copy books will go to the American Heart Association (the other fifteen is for the printing of the book).

US $20.00

In addition, Craftprojectideas.com is contributing $1 for every e-book sold this month! That means in addition to your $5 donation by purchasing the The Heart e-book, Craftprojectideas.com will donate another $1 on your behalf (up to $500!)! Hop over the Craftprojectideas.com Facebook page http://www.facebook.com/Craftprojectideas) and tell them a BIG THANK YOU for being so generous!

craftprojectideas.com showing the love

And we have auctions to help raise money too!

Fundraiser Auctions:

♥  All proceeds of each auction will go to the AHA  

Melissa & Doug -  4 Trunki with Teddy Bear Auctions!

  1. Trunki with Teddy Bear, ends Feb 10
  2. Trunki with Teddy Bear, ends Feb 10
  3. Trunki with Teddy Bear, ends Feb 10
  4. Trunki with Teddy Bear, ends Feb 10


Fudoo Boards - 3 Fudoo Board Kits for Auction!

  1. Fudoo Board Kit, ends Feb 10
  2. Fudoo Board Kit, ends Feb 10
  3. Fudoo Board Kit, ends Feb 10

Giveaways are going to be happening every day from now until the 14th! There will be more than one some days, so be sure to check them all out! These giveaways are from The Heart Project Bloggers who are very generously donating their projects (from The Heart Book!), or something related to their heart project. There are also a couple special giveaways from Melissa & Doug, Fudoo Boards and CraftProjectIdeas.com! Be sure to check back each day to enter that day’s giveaways!

Check out the wonderful bloggers that contributed to this awesome project!

hands on : as we grow
A Little Learning for Two   Among Many Blessings
Angelique Felix
At Home with Ali   Broken Treasures
Busy at Home
Busy Kids Happy Mom   Carrie Saindon’s Photo Journey
Child Central Station
Classified: Mom   Classroom Magic
Creative with Kids
Creativity My Passion   Critters and Crayons
De Tout et de Rien
Dilly-Dali Art   Dinosaurs & Octopuses
Excited 2 Learn
Hand Over the Cookies   Handprint & Footprint Art
Happy Hooligans
Heart Journey   Imagination Soup
Jamie’s Jumble
Kitchen Counter Chronicles   Kreative Resources
Let Kids Create
Little Illuminationss   Living Montessori Now
Loudness of the Lambs
Love and Lollipops   Mama, hocemo nesto da pravimo
Mama Pea Pod
Mama Smiles   MemeTales
Messy Kids
Mindful Meanderings   Mom to 2 Posh Lil Divas
Mommy Labs
Mommy Perks   Mum Paints Lives
Mummy Mummy Mum
My Creative Family   NurtureStore
One Artsy Mama
Peace Love & Rainbows   Play Dr Mom
Putti Prapancha
Rainbows within Reach   Reading Confetti
Ready. Set. Read!
Red Ted Art   Sense of Wonder
Share & Remember
Stacy Molter   Sun Hats & Wellie Boots
Teach Preschool
The Artful Child   The Chocolate Muffin Tree
The Craft Barn
The Educators’ Spin on It   The Golden Gleam
The Imagination Tree
The Iowa Farmer’s Wife   The Joy of My Life
The Kids Fun Review
The Outlaw Mom Blog   The Preschool Toolbox
The Seeds Network
Toddler Approved

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