Be Part of the Spring 2015 Issue of Lupus Now!
Be a part of the Spring 2015 issue of Lupus Now magazine. The Editor is looking for people to interview - check out the topics now!
What do I need to know if I am planning for surgery and I have lupus?
What seasonal allergy medicines can I take?
If I have lupus, can I get allergy shots?
Are there any birth control methods that should be avoided if I have lupus?
What types of birth control can I use if I have lupus?
I am struggling to be intimate with my partner. What can I do?
Can I have sex if I have lupus?
If I have lupus, can I still breastfeed my baby?
Can clinical depression be caused by the effects of lupus on the brain?
Are flu and pneumonia vaccines safe if I have lupus?
If I have lupus, should I get the shingles vaccine?
How do I transition into my role as a caregiver?
As a caregiver, how do I handle the unpredictability of lupus?
How do I deal with feelings of anger or frustration?
Why is having a support system important?
How can a caregiver be prepared for an emergency?
How do I care for my loved one who has lupus while caring for myself?
What happens if I leave my lupus untreated?
How can I learn to accept my lupus?
Can I still work after my lupus diagnosis?
Are weight control programs safe for people with lupus?
Are vegetarian or vegan diets okay for people with lupus?
What should a person with lupus know about taking herbal supplements?
Should a person with lupus take extra vitamins and minerals?
Should a person with lupus be on a gluten-free diet?
Should people with lupus stop eating red meat?
What can I do about the weight gain from prednisone?
What do I need to know about acupuncture and lupus?
What are some non-medication ways to relieve pain?
Is there a diet that will lower inflammation?
Will 'nightshade' vegetables increase joint pain or lupus flares?
What do I need to know about drinking alcohol and taking Plaquenil®?
What do I need to know about massage therapy and lupus?
What are the most common causes of death in people with lupus?
How can traveling be made easier?
How can rehabilitation professionals help me?
What is the prognosis for a person with lupus?
How will lupus affect my family?
Can lupus affect my friendships?
Am I at increased risk for infections?
How do I explain lupus to others?
Are there exercises I could do to keep myself healthy?
Can I treat lupus with complementary and alternative medicines?
Should I be following a specific diet or nutrition plan for my lupus?
How does smoking affect people with lupus?
Be a part of the Spring 2015 issue of Lupus Now magazine. The Editor is looking for people to interview - check out the topics now!
Cindy Coney talks about how living with a disease that most people can't see is a mixed blessing and dealing with the common statement, "but you don't look sick?"
Last year, while living in Puerto Rico, 14-year-old Amarissa Mauricio and her family had their lives turned upside down when she began to experience an onslaught of symptoms including fevers, skin rash, infection and joint pain so extreme she was unable to walk.
Jewel, a young woman who enjoys living an adventurous and active lifestyle, shares her story on how she has been able to continue her active life despite lupus.
As summer draws to a close and the cooler months creep in, flu season is right around the corner. It is important to take preventative measures to protect yourself against the flu. Those with lupus are at increased risk for infections (including the flu); so, for most people, getting a flu shot should be a top priority.
Entertainer and TV personality Nick Cannon explains his philosophy about living and coping with this unpredictable and misunderstood disease.
Ask the Experts: Cindy Coney discusses dealing with holiday stress with lupus.
Farah Jasmine, author of the blog High Heels and Training Wheels, discusses some of the difficulties of taking part in some of the most typical parts of being a parent: back to school shopping and school activities.
Health advocates are part of a new profession to help patients remove barriers to the care they want and need. This emerging field helps patients by building skills and connecting them to resources so patients can participate and drive their health care experience and make the best decisions possible.
Researchers study effectiveness of the HPV vaccine in people with lupus
Actor Ian Harding from Pretty Little Liars supports his mom Mary through lupus advocacy, awareness and fundraising efforts
Any type of creative outlet—painting, sculpture, photography, acting, or dance—can be therapeutic, provided the artist is able to find a sense of healing and release in the practice. See how four people living with lupus are using art to help them cope with lupus.
Read Aiden's story about her life with lupus and how she couldn't have gone through this experience without the help from her mom.
There are many things that can be done prior to elective surgery, to increase the possibility of a safe outcome.
Sharon Mack, Health Educator for the Lupus Foundation of America, discusses her journey as a caregiver and introduces the Foundation's newest caregiving content.
A new study supported by the Lupus Foundation of America and published in Arthritis and Rheumatology offers clinicians and researchers a new way to better understand how various treatments may impact the quality of life of children and adolescents living with lupus.
Lupus Foundation of America activist, Mallory Dixon, reflects on her life living with lupus and shares her incredible lupus journey over past year. Read Mallory's story and learn why she is grateful for her lupus diagnosis and how she lives each day to the fullest.
Sometimes, the best exercise might be the simplest: walking. Indeed, walking builds joint strength, and it helps shed pounds so that joints carry a lighter load. And it’s ideal for people at all fitness levels, especially beginners.
The Editor of Lupus Now magazine needs people to interview for the Summer 2014 issue. If you have activities your family does together - despite lupus, or use yoga to help you live better, we want to hear from you!
The best part about warm weather is our renewed ability to enjoy outdoor activities. However, it’s best not to jump right into a rigorous exercise program. This is a good time to ease your body into the idea of working out. Learn key tools that all people with lupus should know about exercise.
People who live with chronic diseases such as lupus often come to value health care providers who give particularly attentive and effective care. But what many don’t realize is that while you may be grateful for these medical professionals, many of them also appreciate you.
Cindy Coney, a nationally recognized speaker and former national board chair of the Lupus Foundation of America, draws from her own personal experience about how to find energy to play while living with lupus.
When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read on for tips on supporting your child with lupus.
Newly retired P.E. teacher, Janice Wolfe-Easley, found solace in scrapbooking. Learn more about Janice’s story and how scrapbooking keeps her in high spirits.
A recent review of lupus quality of life studies found five common themes that describe the experiences of adults living with lupus. Healthcare providers can now use these themes to develop and expand patient-focused care and support services that will improve health and treatment outcomes.
Erin Kotecki Vest, blogger and a lupus activist from Los Angeles, discusses why she and her family decided to enroll in Obamacare and how it has benefited her life living with lupus.
Ask the Experts: Susan Gustafson, Health Insurance Specialist, Centers for Medicare & Medicaid Services discusses the Health Insurance Marketplace
Cindy Coney, immediate past chair of the Lupus Foundation of America, will be the keynote speaker at the 13th annual North Carolina Lupus Summit in Charlotte. Read more about her story.
Jessica Goldman Foung discusses helpful tips to keep healthy this holiday season during holiday feasts.
Dawn E. Isherwood, Lupus Foundation of America Health Educator, shares best practices and encouragement to quit smoking.
Dr. Hermine Brunner of the Cincinnati Children's Hospital discusses her research on health-related quality of life in children and adolescents with lupus.
R. Paola Daly, Outcomes & Health Senior Manager, Lupus Foundation of America, shares her experience from the annual American College of Rheumatology meeting in San Diego and great tools she learned about on living well with lupus.
The Health Insurance Marketplace offers coverage to many Americans who currently do not have health insurance. We have gathered relevant links to help you locate the information you need to know.
Jody Gehrmann shares her experience of living with lupus and staying physically active and the journey she and her husband are taking to climb Mount Kilimanjaro.
We each have the right to express ourselves. But when communication causes confusion, misunderstanding, and frustration, it’s not communication. In this article, psychologists Paul J. Donoghue, Ph.D., and Mary E. Siegel, Ph.D., examine how we speak, how we listen, and how we can be more effective at both.
Five men share their stories about living with lupus, and finding support in groups specifically for men.
Summer is the season of fun and relaxation, a perfect time to pick up a new hobby. Here are five popular and inexpensive pastimes for people of all activity levels, and easy ways to get started.
A study published in a recent issue of the journal Lupus reports that people with lupus had a 70 percent increased risk of developing shingles compared to participants without inflammatory disease.
Research shows that owning a pet can be good for your health.
A number of Affordable Care Act provisions are helpful to people with lupus. These include banning insurance companies from denying coverage for pre-existing conditions; allowing young people up to age 26 to receive health insurance through a parent’s plan; and eliminating insurance coverage caps.
The cold and flu season is upon us again, and this year it has gotten off to "about the earliest start in the last decade," according to the Centers for Disease Control and Prevention. Dawn Isherwood, Health Educator for the Lupus Foundation of America, writes about a few ways to avoid the cold and flu this season.
Studies Focus on Advancing Research and Improving Quality of Life for People With Lupus.
It’s no secret that infections pose a greater risk for people living with lupus. In fact, infections are the second most common major cause of illness and death for people with the disease. It is important to make your health a priority, and take steps to protect yourself.
For many young people with lupus, the transition to caring for themselves as adults is challenging.
People with strong social relationships have fewer health problems, are happier, and have increased longevity, researchers found.
In addition to medications and other medical care from doctors, a large and growing number of people turn to other healing practices to try to improve their health.
The findings of this study indicate that adolescent girls with lupus scored significantly lower on measures of positive body image and felt increases in negative mood, negative self-esteem, and depressive symptoms.
The researchers hoped to determine whether children with lupus have worse academic functioning relative to their peers of similar demographic and socioeconomic background.
The Lupus Foundation of America’s Summer Issue of Lupus Now® Magazine highlights Shannon Boxx' journey as a professional soccer player living with lupus.
The researchers hoped to learn about possible differences in treatment preferences for lupus among members of different racial/ethnic patient groups, as well as demographic or clinical characteristics associated with such preferences.
Playing and being silly can have deeper meanings and, sometimes, a profound impact on people with lupus.
Meditation, Fellowship, Prayer: There Are Many Paths to a Spiritual Center
Joining in the federal government’s ongoing skin safety campaign, the Food and Drug Administration released new rules that all sunscreen manufacturers must abide by starting in December 2012 for larger companies that make sunscreen, and in December 2013 for smaller companies.
If you’re living with lupus, it takes something extra to succeed at work while managing your symptoms. Read on to find out how Olympic gold medalist Shannon Boxx and others with lupus learned to thrive in their careers.
Dr. Karen Costenbader of the Brigham and Women's Hospital in Boston provides information about ways people living with lupus can better cope with the disease.
A more detailed understanding of the reproductive behavior of women with lupus can help identify their needs in terms of caring for their disease and become educated about its possible effects, including those on reproduction.
Having lupus is known to negatively affect specific aspects of work life. In general, the following are associated with work loss among people with lupus: lower levels of education, minority race/ethnicity, advanced age, longer disease duration, higher disease activity, and cognitive involvement.
The results of this study indicate that having lupus is significantly disruptive in a number of aspects of family life, including family activity participation, role functioning, and mental health, as well as social support and intimacy.
Spring Issue of Lupus Now® Magazine highlights how Maurissa Tancharoen Whedon found support through her all-star network of friends and family.
Thinning hair is common among people living with lupus. So is the whirlwind of emotions that comes with hair loss. Whether the result of lupus or a side effect of medications, hair loss can be a big shock, particularly when hair does not grow back.
Music can be therapeutic for many problems the body encounters, including symptoms of stress, pain, and fatigue that many who live with lupus experience on a regular basis.
Investigators Present Research Findings at 2011 American College of Rheumatology Scientific Meeting.
Dr. Meenakshi Jolly, of Rush University Medical Center in Chicago, discusses the results of a study to validate an instrument to measure disease activity and quality of life.
Though your body may be layered under sweatshirts and coats, staying active and healthy is important in the winter months.
Many experience changing dynamics in their relationship when a loved one is handed a lupus diagnosis.
Preplanning Can Ensure a Smoother Transition to Your New Home
The researchers hoped to learn the prevalence of self-reported photosensitivity among people with lupus, as well as its effects on quality of life.
The researchers hoped to learn about lupus-related factors, especially heart disease, that may contribute to the development of depression in people with lupus.
What do blueberries, strawberries, and acai berries have in common? The natural compounds called polyphenolics found in these red and blue fruits—and possibly in walnuts—activate the brain’s natural “housekeeper” mechanism. In other words, yummy berries may boost your memory as you grow older. Read more!
Dario Dieguez, PhD, from the Lupus Foundation of America joined leading NIH lupus experts to explore current issues in lupus, including risk factors and treatment therapies.
Several celebrities and a crowd of 600 people celebrated a new era of lupus at Lupus Foundation of America's National Butterfly Gala in Washington, D.C.
Lupus Foundation of America is launching a website, Lupus Voices Across America™, that will allow people with lupus and their supporters to share their stories.
The Peer Reviewed Medical Research Program 2011 vision is to improve the health and well-being of all military service members, veterans, and beneficiaries.
LFA to honor Roch Doliveux, Chief Executive Officer, UCB; U.S. Senator Thad Cochran (MS); and Francis S. Collins, M.D., Ph.D., Director, National Institutes of Health.
The researchers hoped to learn whether contraceptive counseling had effects on the frequency of use of contraceptives.
March is Save Your Vision Month, and the American Optometric Association (AOA) encourages Americans to prevent workplace eyestrain by following some easy and important steps.
As a member of the design team on the popular series Extreme Makeover: Home Edition, Eduardo Xol helps improve the lives of a family in need every week for ABC TV. Off camera, Xol is helping his sister cope with lupus.
For individuals with lupus, bone health may be a concern as medications can lead to bone loss. However, low bone mass density is often treatable.
While you can’t stop seeing your numerous physicians, you can find ways to lower your health care costs.
The researchers tested the LupusQoL-US instrument to see how well it could pick up different active clinical features of lupus from the point of view of the patient’s experience.
Program Provides Individuals the Opportunity to Learn from Leading Lupus Experts.
Lupus is an unpredictable and life-changing disease. Putting yourself in charge of your own health, relationships and life is just one way fight back against lupus.
Many people with lupus ask, “Is there anything I can do to improve my health?” If you’re a smoker, the answer is yes: Stop smoking! More than any other lifestyle choice you can make, that will have the greatest positive impact on your lupus and overall health.
As you prepare for the holiday season and the cold winter months, be sure to consider what small steps you can take to try to prevent catching a cold or the flu.
Dr. Meenakshi Jolly of the Rush University Medical Center shares observations from studies conducted to learn how to improve the quality of life for people with lupus.
Dr. Lakshmi Nandini Moorthy, chief of pediatric rheumatology at the Robert Wood Johnson Medical School in New Brunswick, discusses a tool to measure the health related quality of life (HRQOL) among children with lupus.
The researchers hoped to accurately determine the frequency and outcome of neuropsychiatric lupus, as well as its impacts on quality of life.
The researchers hoped to learn whether a lupus damage questionnaire, filled out by lupus patients instead of their doctors, would be accurate and/or useful.
Until the 1950s, most people thought of sleep as a passive, dormant part of daily life. We now know sleep affects our daily functioning and our physical and mental health in many ways we are just beginning to understand.
How to Stay Upbeat When Dealing with Lupus
Dealing with conflict takes energy, and when you’re living with lupus, energy can be in short supply. If you’ve tried your best to resolve a problem, but it still remains, consider using these 10 ways to regain control.
Living with lupus can be stressful, be it is important to ensure that there is balance in our lives and deserve to treat ourselves every once in a while.
Puberty, birth control, bone health, and menopause are just some of the things women living with lupus need to be concerned with, and whether you’re 15, 25, or 60, there’s plenty for you to know.
Dr. David Wofsy of the University of California, San Francisco, leads a discussion and takes questions about being newly diagnosed and living with lupus.
The researchers hoped to learn whether cognitive behavioral thearpy could help people with lupus cope with stress, anxiety, and depression, all of which may co-occur with a chronic illness.
Learning how to manage your time effectively, and how to say “no,” is a difficult but necessary part of managing lupus.
Join us for our third annual Southwest Florida Walk to end Lupus now in Naples. Lets rally together to create awareness of lupus while raising funds to fight this terrible disease.
We are heading back to the Palm Beach Zoo for our South Florida Spring Walk to End Lupus Now! Please join us as we rally together to create awareness of lupus while raising funds to fight this terrible disease.
Don't miss this opportunity to learn from some of the world's leading lupus experts from the comfort and privacy of your home!
Learn how to reduce and cope with stress.
What you need to know to help with issues surrounding disability.
Join us for the SLE Self Help Course - a five week program designed to teach people with lupus how to take a more active part in their health care and live better despite lupus.
Making a difference starts with one step!
Join us for the only lupus educational seminar series in Florida. This comprehensive event will cover a variety of topics and the latest lupus advancements.
Join us for the only lupus educational seminar series in Florida. This comprehensive event will cover a variety of topics and the latest lupus advancements.
View upcoming support groups, educational programs, fundraising events, and more.
Please join us whether you are a patient, caregiver, or anyone who wants to learn more about lupus.
Learn how to reduce stress to help cope with lupus and improve your overall well-being.
Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
Learn about the various emotions, including depression, that are a normal part of having a chronic illness such as lupus.
This seminars will provide information on two different topics: Health-Related Exercise for People with Lupus and Lupus and Overlapping Disease.
This seminar will provide information on 2 different topics: Lupus and the Musculoskeletal System and Complementary and Alternative Medicine.
This seminar will provide information on 2 different topics: Lupus and the Heart and Lupus and Exercise.
This educational seminar will provide information on 2 different topics: Lupus and Nutrition and Lupus and the Kidneys.
Patients, caregivers, and the medical community are invited to join us for a day devoted to those affected by lupus. The Annual NC Lupus Summit is the largest educational conference on lupus in the state and provides a variety of discussions led by physicians and other experts dedicated to clueing in on the mystery of lupus.
An educational symposium brought to you by the Lupus Foundation of America, Inc.
Space is limited, so reserve your tickets today! Payment can be sent to Lupus Blacklight Zumba, 208 N Pinecrest, Wichita, KS 67208. For more information please call us!
This eight-city series of educational seminars will provide individuals affected by lupus with methods for not only living, but also thriving. The seminars will provide information on two different topics and participants will learn from both subject matter experts and a panel of individuals living with lupus. Feel empowered to take charge of your health!
Educate yourself on the basics such as the criteria for diagnosing lupus, understanding laboratory results, treatment options, and other do’s and don’ts to help you live better with lupus.
Our Intimacy and Lupus teleconference will teach you how to maintain a strong, healthy relationship with your partner, building a long-lasting bond while managing a chronic illness such as lupus.
The Mid-South Chapter is presenting its first "Living with Lupus" seminar in Huntsville, AL on Saturday, March 15, 2014. Dr. Winn Chatham will be presenting the topic, "Current & Promising New Approaches to Treating Lupus".
The walk is over, but you can still register towards your goal. You will have until April 29th to continue to fundraise and help us end lupus now in Alabama. We can win this fight and provide relief to the 27,000 Alabamians suffering with the complications of this mysterious disease. Please do not hesitate to call or email us if you have any questions.
Participants will learn ways to manage severe and chronic pain including medications, therapies, and coping strategies.
Participants will learn ways to manage severe and chronic pain including medications, therapies, and coping strategies.
Learn how to help manage severe and chronic pain associated with lupus including practical tips and precautions, prevention, and coping strategies.
Stop by and visit the LFA, PNW table at the event.
Learn more about living with lupus at the Life + Lupus... an Educational Symposium.
Questions about coping with Lupus? Sign up today!
Join us for Walk to End Lupus Now and show your support to fighting this cruel disease!
Lupus: Ask the Experts is a series of live educational teleconferences designed to provide you with important information about living with lupus.