Looking ahead to 2019: creating a European Year for Rare Diseases

In run-up to the European Parliament elections, Yann Le Cam, Chief Executive Officer of EURORDIS, the European Organisation for Rare Diseases, calls on citizens and candidates to help make 2019 the European Year for Rare Diseases:

For the past seven years, EURORDIS has coordinated Rare Disease Day internationally, celebrated each year on the last day of February.

We want greater European action to help people with rare diseases. Acting together makes sense in this area because of the low prevalence of these conditions. EURORDIS  is taking the lead in underlining the added value of Europe in this field by proposing to make 2019 the European Year for Rare Diseases.

The outcome of the European elections will determine the agenda for health and research for the coming years. EURORDIS wants the support of citizens, candidates and new MEPs to show our solidarity to some of Europe’s most vulnerable citizens by supporting our call.

Watch the video below to find out more and show your support by tweeting with the hashtag #EYRD2019.

 

Since 2012, Burson-Marsteller Brussels has been providing pro bono support to EURORDIS for the organisation and promotion of awareness-raising campaigns to mark Rare Disease Day. Most recently, Burson-Marsteller Brussels committed to continuing that support to include the communications campaign for the European Year for Rare Diseases.