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ECW
2003 (13) Autistic spectrum disorder

E is now 10 years old. His ASD was diagnosed when he was 4 years old. He was categorised as severe. Looking back, we can see that he regressed into autism from the age of about 18 months. At the time, we were trying to treat his growing allergies - he had ezcema and food problems - and we took diary out of his diet. It was only later that the scale of the cognitive damage became evident. His bowel was the most pressing problem in those early years. He had diarrhea which later turned into terrible constipation.� Since his diagnosis we have treated with diet, bowel treatments (enemas, anti-biotic, probiotics) and supplements. His physical health has much improved (sleep, appetite, skin, growth are all much better) but he still has cognitive problems. He has been at school for 5 years and still cannot read or write. He enjoys interacting with other children and adults, but cannot form friendships (as he does not operate at the same level as his peers) not can he access complex information. He speaks and communicates his needs but does not converse in any depth. There are things blocking his mental development. He is in mainstream school with full time assistants but we are now looking at specialist provision for secondary level. E looks well and is energetic. He loves swimming, climbing, walking and running. It is his cognitive abilities that really hold him back.

Feedbacks Recived For ECW

  "Speech - 5 Sociability - 16 Sensory - 20 Health - 27 Total - 68 - 20th January 2014 Speech - 5 Sociability - 8 Sensory - 14 Health - 21 Total - 48 - 16th April 2014 Speech - 5 Sociability - 5 Sensory - 18 Health - 16 Total - 44 - 29th May 2014 Speech - 6 Sociability - 5 Sensory - 17 Health - 16 Total - 44 - 10th November 2014 Speech - 6 Sociability - 5 Sensory - 17 Health - 16 Total - 44 - 10th November 2014 Speech - 6 Sociability - 5 Sensory - 17 Health - 17 Total - 45 - 03rd January 2015 Speech - 6 Sociability - 5 Sensory - 17 Health - 13 Total - 41 - 23rd May 2015"

Products Used: MAF Spray then MAFactive

Progress: Not relevant/No progress

submitted on 1 April 2016

  "We had a bad phase in the new year - reactivated chickenpox - and had to stop everything. Behaviour deteriorated. We had a lot of screaming and upset. In the last month we have got back to supporting health again - with supplements and gcmaf. We are using one squirt under the tongue again and so far, no side effects at all. Things back to where we were before the illness. Stable condition. Not yet improving dramatically, but at least back to where we were."

Products Used: MAFActive cream

Progress: Worse

submitted on 1 April 2016

  "We haven't seen changes for some time. We used the cream for 3/4 weeks and saw no changes. He suffers from hyperactivity and a lot of talking to himself (his brain is very busy repeating old dialogue). We are wondering if it would be better to go back to trying the spray again. WE had great gains early on - although we were also starting a new probiotic, Symprove, at the same time. Maybe the combination was good for his system but overtime, the rate of improvement dropped off."

Products Used: MAFActive cream

Progress: Worse

submitted on 1 April 2016

  "No real change for some time now - slight deterioration in talking to himself and shouting out."

Products Used: MAFActive cream

Progress: Worse

submitted on 1 April 2016

  "We started using the cream after the TA conference (10.11.14) and 3 weeks later, can say ECW has been fine and doing well but no major changes in cognition. We had a rash on torso for 3 days a week after starting but nothing since. Not sure if cream is more effective than spray ?"

Products Used: MAFActive cream

Progress: Not relevant/No progress

submitted on 1 April 2016

  "We had a good summer and when we restarted GCmaf after the holiday ECW seemed to become more hyperactive. We ended up stopping the treatment for a while but now think the hyperactivity may have been related to his bowel rather than the Gcmaf. We will restart the treatment. Will try and cream everyday and review progress"

Products Used: MAF Spray

Progress: Better

submitted on 1 April 2016

  "We were using the GCmaf every day - we then had a break from 24-27 May when he stayed with grandparents for half term. The post-GCMaf period was amazing - he was very calm, happy, slept well and bowels were good. It seemed that coming off it promoted improvements. We then restarted (28th May) and he seemed very hyperactive. We stopped again (31st May) and he had a brilliant week (the best in years) but into the second week his bowel was slowing up, his sleep deteriorating and his hyperactivity increasing. We have started again - 13th July - and are hoping that he will improve again. It seems as though the dosage needs to be slower - maybe every other day or one week on, one week off, to prevent increased hyperactivity and reduced sleep. Without it though, bowel movements deteriorate. Does this fit with others' experience?"

Products Used: MAF Spray

Progress: Better

submitted on 1 April 2016

  "He has made slow improvements in well-being rather than cognition. There have been no immune reactions since those last reported although he has had a couple of colds and had a runny nose with these."

Products Used: MAF Spray

Progress: Better

submitted on 1 April 2016

  "there are some minor improvements and it has been a good month but no major change, he still struggles with learning/cognition"

Products Used: MAF Spray

Progress: Better

submitted on 1 April 2016

  "improvements in social contact and engagement calmer and less confrontational"

Products Used: MAF Spray

Progress: Better

submitted on 1 April 2016

  "started GCmaf under tongue every other day from 1/3 and had rash on torso on evening of 5/3, now cleared up by 10/3"

Products Used: MAF Spray

Progress: Worse

submitted on 1 April 2016
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