Newly Diagnosed?
FSHD Society News
The disappearing bomb
How DUX4 could cause FSHD without actually being there BY AMANDA HILL, HIGHLANDS RANCH, COLORADO In the FSHD research field, there is an emerging idea that the damage caused by DUX4 may linger on long after DUX4 is no longer present. But how can this be? To illustrate, imagine DUX4 as one of those trendy … Read more of “The disappearing bomb” »
Webinar on CRISPR strategy to treat FSHD
For our next webinar on August 10, at 2 p.m. EST, Charis Himeda, PhD, of the University of Nevada Reno will discuss her pioneering work to show how CRISPR gene-editing technology can be used to silence the DUX4 gene. She will give us an update about her progress toward developing a treatment, as well as answer … Read more of “Webinar on CRISPR strategy to treat FSHD” »
The journey of a forensic psychologist
by Heather Green There are moments in every life that are defining. We can live weeks, months, and years sometimes without having anything memorable happen, then in a flash, our lives are forever changed. These moments create memories that are seared into our brains. Psychologists call these “flashbulb memories,” and these events, when remembered come … Read more of “The journey of a forensic psychologist” »
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Milestones in Advocacy
FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.
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